[tri-med] Re: U/S for Wilm's

Hi Jennifer!
We've done one ultrasound at six months for Keren, and plan to do 
another at a year (and just stick with that schedule).  Had a "renal" 
ultrasound, which I guess covers the kidneys and tumors.  It was one of 
those little reassurances....  I haven't heard of doing a CT for it.

I think that's all I know at the moment!  Hope it helps...

Loren (wife to Kraig, mom to Keren, T18, 11 mo. and counting! :) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075

On Thursday, August 28, 2003, at 10:47 AM, Jennifer Vanderbeek wrote:

> Hi, me again!  Has anyone had screenings for Wilm's Tumors?  What is 
> the
> usual process?  We were supposed to have a CT tomorrow for Elanor, but
> from what I heard, you only needed to do an ultrasound.  If it does 
> have
> to be a CT, what do they do about the barium shake.  She has a fundo,
> and it's really hard on her when she actually vomits.  Also, how often
> is screening usually done?  I know John Carey recommended about every 4
> months, 6 at the least.  Our dr. says once a year (of course we're
> changing--we actually liked the 1st doctor we interviewed, and he was
> actually familiar w/ t18 & seemed very receptive to our goals and
> ability to determine what Elanor needs. Hooray!).
> Thanks!
>
> Jennifer, mom to Elanor-3 1/2, full T18; and Arwen-5 1/2; caregiver to
> Joe-25 cerebral palsy & spastic dysplasia; wife to Andrew-31 and
> wonderful!
> Boise, Idaho USA
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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