[tri-med] Re: Trisomy baby continous fed

Thanks I needed that!
This kind of support is wonderful
Kelly
----- Original Message ----- 
From: "Jennifer Vanderbeek" <Phil46@xxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Sunday, August 27, 2006 9:58 PM
Subject: [tri-med] Re: Trisomy baby continous fed


> Never let them tell you when Amos is done.  If you can look in his eye =
> and
> he is still there, fight for him. That's our job.  We are their parents. =
> We
> fight when they can't. =20
>
> I lost count of the times "they" wanted us to give up on Elanor.  Our =
> rule
> has always been, as long as she wants to live, we are fighting for her.  =
> It
> is what we would do for any "normal" kid.=20
>
> You fight!
>
> Andrew.  Elanor's dad.
>
> "Events are cowards:  they don't occur singly, but instead they run in =
> packs
> and leap out at you all at once." -- Neil Gaiman (paraphrased)
>
> Jennifer Vanderbeek, mom to Elanor, 6 (T18); Arwen, 8; caregiver to Joe, =
> 27
> (cerebral palsy); Eric, 20 (cerebral palsy); and wife to Andrew.
>
>
> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
> On
> Behalf Of McCormick Holly
> Sent: Sunday, August 27, 2006 8:43 PM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: Trisomy baby continous fed
>
> Hi Kelly,
> Is Amos in the hospital in Omaha?  I think I may have corresponded with =
> you
> before, I live in Des Moines.  It just so happens that we are going to =
> be in
> Omaha over Labor Day weekend.  If you are there, is there a possibility =
> of
> meeting at the hospital? =20
>
>
> Holly --  wife of Mike, mom of Morgan (9 yrs.), partial t18q & partial
> monosomy 9p (unbalanced translocation)
> mommy to Clyde (gray kitty) & Cleopatra (white kitten)
> Des Moines, IA
>
>
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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