[tri-med] Re: Trisomy baby continous fed

Never let them tell you when Amos is done.  If you can look in his eye =
and
he is still there, fight for him. That's our job.  We are their parents. =
 We
fight when they can't. =20

I lost count of the times "they" wanted us to give up on Elanor.  Our =
rule
has always been, as long as she wants to live, we are fighting for her.  =
It
is what we would do for any "normal" kid.=20

You fight!

Andrew.  Elanor's dad.

"Events are cowards:  they don't occur singly, but instead they run in =
packs
and leap out at you all at once." -- Neil Gaiman (paraphrased)

Jennifer Vanderbeek, mom to Elanor, 6 (T18); Arwen, 8; caregiver to Joe, =
27
(cerebral palsy); Eric, 20 (cerebral palsy); and wife to Andrew.


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
On
Behalf Of McCormick Holly
Sent: Sunday, August 27, 2006 8:43 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: Trisomy baby continous fed

Hi Kelly,
Is Amos in the hospital in Omaha?  I think I may have corresponded with =
you
before, I live in Des Moines.  It just so happens that we are going to =
be in
Omaha over Labor Day weekend.  If you are there, is there a possibility =
of
meeting at the hospital? =20


Holly --  wife of Mike, mom of Morgan (9 yrs.), partial t18q & partial
monosomy 9p (unbalanced translocation)
mommy to Clyde (gray kitty) & Cleopatra (white kitten)
Des Moines, IA




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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