[tri-med] Re: Trisomy baby continous fed

----- Original Message ----- 
From: "Kelly Rosberg" <rosberg2@xxxxxxxxx>
, I was wondering if all trisomy
> babies are tube fed?

Hi and welcome to the list Kelly!

No, not all trisomy babies are tube fed. And some that are have been weaned 
to oral eating.

Our son Alex wasn't tube fed. In the beginning it took us 1-2 hours to get 
1-2 ounces into him. I modified the bottle nipple and we did a drip into his 
mouth and worked it down at times by rubbing his neck.

He wasn't fully on table foods until he was almost 6 years old. Meats were 
the last thing to come.

Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (15)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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