[tri-med] Re: Trisomy baby continous fed

they just started kammie on an og right when she was born.  i tried to feed 
her when we got home from a bottle but we finally gave up and got the g tube 
at 15 months.  she was always bolus fed during the day and was pump 
continuous feeds at nite until she was 4 and started floating away at nite. 
i was also worried as she got real rolly at nite.
welcome
jude, mom to derek-20 (still searching for a focus), kelsey-18 (going to unm 
to be a pt)
and kameron-9-full t18 (hanging out so i will never be an empty nester)
golden, colorado usa
http://www.judewolpert.com
http://home.comcast.net/~jfwolpert2
http://judewolpert.com/v-web/b2/
----- Original Message ----- 
From: "Kelly Rosberg" <rosberg2@xxxxxxxxx>
To: <Tri-Med@xxxxxxxxxxxxx>
Sent: Sunday, August 27, 2006 5:15 PM
Subject: [tri-med] Trisomy baby continous fed


> Hi, I am new, I have been lurking around, I was wondering if all trisomy
> babies are tube fed? My son is 4 months and has trisomy 18 (full). He
> has had heart surgery for 7 mm hole in the heart. he is doing well be
> the hospital will not help him much. He is in for phemona now. But is
> growing! How do you get them to change him over?
> Thanks for all the great information
> Kelly Rosberg
> Wausa Nebraska
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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