[tri-med] Re: Trisomy Pictures

----- Original Message ----- 
From: "plugginalongpv"
> I asked Lisa "don't any of them live?"...and she answered "no"...I said
> something like, "NO???

Sounds like Alex's geneticist. I got the information over the phone, after I 
asked her what it was, I asked if I could speak to other families. Her 
answer was its so rare that Alex is probably the only child in the world 
thats still alive....... I didnt even get the medical text info - my first 
information in trisomy came from an encyclopedia at the library. And that 
was actually so old that it was still referred to as Trisomy E!!!!

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (11 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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