[tri-med] Re: Trisomy 18 on Oprah Winfrey

When I saw it I assumed that he was saying that they took all the tubes off
just for the photos then put it all back. The thought that they would deny
their son even just food is unbearable. He made it sound like Elliot died
because of the lung and heart problem.



Lena 
- mom to 7 living children; Paul 13, Tommy 10, Philip 8, Mary 6, Christa 4,
Lucy 2 and Sarah my baby with trisomy 18, and two babies that I lost during
pregnancy Baby Angel and Baby Jo, and wife to my inexhaustible, devoted
husband, Tom



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Annette Oseguera
Sent: Monday, October 27, 2008 12:42 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: Trisomy 18 on Oprah Winfrey

Okay, I'm a little confused.  They took off his oxygen and feeding tube and
three days later he dies.  Is that what they were aiming for?  I mean, is
that why they took off his oxygen and stopped feeding him because they
decided to let him die?  The narrator said it was no easy feat.  Does that
mean they thought he was getting better and that's why they took everything
off or that it was a hard decision they had to make?  I know it's their
decision and I respect that but I just didn't get the ending.
 
Annette
--- On Sat, 10/25/08, Barbara Farlow <b_farlow@xxxxxxxxxxx> wrote:

From: Barbara Farlow <b_farlow@xxxxxxxxxxx>
Subject: [tri-med] Trisomy 18 on Oprah Winfrey
To: "tri med lists" <tri-med@xxxxxxxxxxxxx>, "triwings"
<tri-wings@xxxxxxxxxxxxx>
Date: Saturday, October 25, 2008, 10:47 PM

Hello All,
I have heard that Oprah Winfrey is doing a show on "miracle babies"
on Oct 28th and
one of the stories will be about a baby with tri 18 who lived for 99
days. 

His life is the subject of one of the most watched videos on perinatal
palliative care. I am not sure what this will do to promote the ide that the
babies are all unique and the disease is not universally lethal or
degenerative
in the short term. But it will certainly reveal how precious the lives are.


Here is the video. (warning; religious content AND you might need some
tissues!)

http://www.youtube.com/watch?v=th6Njr-qkq0

Barb

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line




      
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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