[tri-med] Re: Trisomy 18 on Oprah Winfrey

What a beautiful video!  I too cried while watching it. Thanks for sharing and 
I'll be sure to tune in to Oprah that day.
 
Wendi, mom to Jackson, trisomy 4p, inverted duplication, 4 years and Jameson, 9 
months
 
 

--- On Sun, 10/26/08, Barbara Farlow <b_farlow@xxxxxxxxxxx> wrote:

From: Barbara Farlow <b_farlow@xxxxxxxxxxx>
Subject: [tri-med] Re: Trisomy 18 on Oprah Winfrey
To: tri-med@xxxxxxxxxxxxx
Date: Sunday, October 26, 2008, 1:54 PM


Sharon,

Its pretty amazing isn't it? The family has since gone on to have a healthy
daughter.

I don't think that accepting, loving and caring for your baby the best you
can needs to be consistent with any religious belief. It is innate for parents
to love their babies. But they need so much support to do that. To be told that
your unborn baby will one day die in your arms if they are lucky enough to be
born alive has to be the most difficult position for anyone to be in. 

I hope that the increased awareness on Oprah will help others to have time with
their babies, no matter how brief. 

Barb





> From: SHAMOND73@xxxxxxx
> Date: Sun, 26 Oct 2008 13:47:48 -0400
> Subject: [tri-med] Re: Trisomy 18 on Oprah Winfrey
> To: tri-med@xxxxxxxxxxxxx
> 
> i cried my eyes out, that was just such a beautiful tribute video. what  
> wonderful, strong parents.
>  
>  
> Sharon
> mom to Jason T17p, 16 months and Lauren 3yrs old
>  
>
==============================================================================
>  
>  
>  
>  
> In a message dated 10/25/2008 11:47:23 P.M. Eastern Daylight Time,  
> b_farlow@xxxxxxxxxxx writes:
> Hello  All,
> I have heard that Oprah Winfrey is doing a show on "miracle
babies" on  Oct 
> 28th and
> one of the stories will be about a baby with tri 18 who lived  for 99
> days. 
> 
> His life is the subject of one of the most watched  videos on perinatal 
> palliative care. I am not sure what this will do to  promote the ide that
the 
> babies are all unique and the disease is not  universally lethal or
degenerative in 
> the short term. But it will certainly  reveal how precious the lives are. 

> 
> Here is the video. (warning;  religious content AND you might need some  
> tissues!)
> 
> http://www.youtube.com/watch?v=th6Njr-qkq0
> 
> Barb
> 
> _________________________________________________________________
> 
> 
> Building ___ooOOoo__  Rainbows
> www.trisomyonline.org
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> 
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>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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