[tri-med] Re: Trisomy 18 do not live


Linda,

> how OLD is the "nursing book" that you refer to in your email?
    The copywrite on the book is 1999.

> Secondly, you can print off all kinds of stories, give hundreds
> of ancedotal information to these people, but will they learn
> from it and believe it?
Perhaps in the 10 minutes I talked this particular class was not effected by
the words or by the paper.  However, I have spent 2 years with these people
with one more year to go.  I know that Marissa has effected them in a way
that books and papers never could. And if just one person we touch comes
across someone else beginning their trisomy journey and offers a little more
compassion, a little more support, and shows them how to find us then wasn't
all the time and effort spent worth it?

Luckily, people also learn from experience.  And those doctors do learn a
little out in the field.  And with people like these on the list, and Karen
the world will learn one person at a time.
Although my message isn't quite as strong as I would like.  One of the girls
in the class cried as she read a list members story.  She said today that
she thinks I'm am the strongest person she knows as she would be crying
everyday. I get tired of saying I take it one day at a time.  At first I did
cry everyday, but Marissa gives more than she could ever take.  Is there any
way to teach that without experience?

April, Wife to Kenny, Mom to Marissa, 3 years old,  PT3 PM10
http://marissakayroles.homestead.com/Marissahome.html
IN, USA

Come to the edge, he said.
I said, I can't, I might fall.
Come to the edge, he said.
I said, I can't, I am afraid.
Come to the edge, he said.
I came, he pushed me. And I flew

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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