[tri-med] Re: Trisomy 13 Request - please help!

Dear List,

I received the the following request from Jennifer, the sibling of a T13 ^i=
^.   She's
working on a high school research paper on Patau Syndrome, and would like t=
o do=20
some email interviews with families who have also been effected.  Since she=
's NOT
on the list though, any volunteers will need too contact her personally at:
bballgirly1290@xxxxxxxxxxxxx

Thanks guys, I KNOW I can count on at least a few of you to volunteer your
considerable expertise....

Fawna, mom to Philina, 23yrs, PT6p & Moya Moya Syndrome
Research Coordinator: Tracking Rare Incidence Syndromes Project
-----Original Message-----
>From: Jenni Wells <bballgirly1290@xxxxxxxxxxxxx>
>Sent: Jan 29, 2006 5:30 PM
>To: info@xxxxxxxxxxxxxxxxxxxxx
>Subject: please help!
>
>  Hello.
>  =20
>  My name is Jennifer Wells and I am a freshman at Ladywood High School in=
 Livonia, MI.  This is my second time trying to contact you.  In case the l=
ast email did not come through, I'd like to tell you why I need your help. =
 When I was in first grade, on March 22, 1997, my mom gave birth to my litt=
le brother, Daniel.  He was born with Trisomy 13, and died at 5 days old on=
 March 27, 1997.  My mom has explained to me what Trisomy 13 basically is, =
but I want to find out more.  I want statistics of how many women give birt=
h to babies with that disease every year.  I want to figure out so much mor=
e than we know.  There hasn't been much reasearch out about it, so I decide=
d I would write my reasearch paper in my Literature class about that.  If a=
ny one at your facility can do an email interview for me, please let me kno=
w preferrably in the next 2 weeks. If no one at your premesis can help me, =
can you please direct me to another source, i.e, a specialist on chromosome=
 disorders.  This is my final email, so please respond, even if you cannot =
help me in any way!  Thank you so much and God bless!
>  =20
>  Sincerley,=20
>  Jennifer Wells
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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