[tri-med] Re: Trisomy 1 Site

>Butler PA is about 45 minutes due south from me (we are in the booming=20
>metropolis of Oil City, PA)!  I actually lived in Butler one year about 10=
 +=20
>years ago - way before marriage and babies.  What a small world!!!

Dogpile rocks....seems Steven's mom submitted the below to "Tube Talk"

Makeshift G-tube Holder

Our son Steven is a very active sleeper and we worried about him pulling on=
=20
his G-tube. To hold the tube in place, we use a nametag clip. First we make=
 a=20
loop out of his tube, then we wrap the plastic loop from the name tag aroun=
d=20
his tube and snap it shut. The clip part we attach to his diaper. This make=
shift=20
holder gives Steven room to move around without the tube pulling on his=20
stomach. When he had a G-J tube, we did the same thing so the tube did not=
=20
dangle. (Editor=92s note: this tip was first published in MUMs National Par=
ent-to-
Parent Network Newsletter.)

=97 Charlene Jurysta
114 Whitetail Lane
Butler, PA 16001=20


Fawna
"You've got to live on
the edge and say what the heck - push enter!"

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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