[tri-med] Re: Toxic products?

>This really interests me!  We give Natalia just Pedisure!  I have
>often asked if she needs anything else...and I get "All the nutrition
>is there!"  Are most of the g-tube kids taking extra nutrients besides
>the formula...and are you just on formula or do you add something else???

As anyone who has met Philina will probably attest, kid is as big and
healthy as a moose, and has always required very little in the way of
non over-the-counter meds.

Miss P is back to mostly eating, and just uses the g-tube for supplemental
Ensure and nasty tasting T.J. Clark Legendary Colloidal Mineral Formula.
(Which turns her tubing into a funky hazy looking thing btw.  Warning: I
even tried the Coca Cola cleaning method the other day on this, and now
the haze is just coke colored, and looks even worse.  Guess it's a good
thing we usually only bolus feed her at home.)  I use to give her a nicer
tasting one that didn't turn her tube, but the company merged with another
one out of England awhile back, and I'm no longer a distributor for them.
So now I just use what I can get at the local health food store while I'm
picking up her Learning Factor omega-3's.  If it weren't for the tube
though, I'd HAVE to find another source of a better tasting, good quality
tonic.

I also give her 4 capsules of Calcium with Vit D & Magnesium powder, and 2
of the Learning Factors omega-3 soft gels daily.  I think you can get
omega-3
in liquid form, but I just buy the regular since she can swallow pills
these
days whole, if I mix them in apple sauce or yogurt for her. (Regardless,
soft gels could be squeezed into tube feeding in a pinch, and the powder
mixed
in.  Though when Miss P was Natalia's age, I was still grinding up Tums as
her extra calcium supplement.)  Only other things I've ever put down her
g-tube
were Water, prune juice, Coca Cola to help with that mucus digestion
thingy,
and a little olive oil when I was desperately trying to get some weight
back
on her.

Fawna, mom to Philina 22yrs (PT6p & Moya Moya Syndrome), &
research coordinator for Tracking Rare Incidence Syndromes
(TRIS) Project http://home.mindspring.com/~fawna33/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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