[tri-med] Re: Touching base on quilt and update on Hannah.

i sent mine but i do'nt think it will be there on time Gina
----- Original Message ----- 
From: "Janet King" <jlvking@xxxxxxxxxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Saturday, October 30, 2004 3:11 PM
Subject: [tri-med] Touching base on quilt and update on Hannah.


I have received a few of the squares for Hannah's quilt. (so far from
Michelle W., Fawna, Rebecca, Jeanette, and Tracy)

They are ALL absolutely wonderful and each one has made me cry! If you
haven't gotten your square yet I apoligize ... It's been crazy here =
lately
and I lost some notes but I think I have them all out now so watch your =
mail
Linda and Gina. Is there anyone else I've missed???

Hannah went to the Pulmonologist yesterday. They ended up sending us to =
the
hospital (across the street via sky bridge) for a chest x-ray. There is
something that looks mildly denser than the last good x-ray but he =
wanted to
let the radiologist doublecheck it. So far we haven't heard anything. I
asked about the VitalStim Therapy (www.vitalstim.com) but he hadn't =
heard of
it. When I explained what it was he was very interested and said to talk =
to
the Physitrist about it and let him know what I find out because he is
interested in learning more.

They found out that Hannah is too small to use the vest for pounding her
chest. So we'll wait 6 months or so and try again. We are now to do =
Xopenex
3x a day followed by CPT. When are the doctors going to write mom and =
dad a
script for some extra time to deal with all this stuff???!!!???

Hannah goes to the UT hearing center on Nov. 22nd for testing. The ENT's
office said something to Donn about possibly an amplification system for =
her
to help her hearing. We shall see.

On a fun note... Donn got a one time longevity bonus in this month's =
check.
So last night I bought a plane ticket for my mother which will put her =
here
for both Christmas and New Years! She doesn't know yet. I made a =
Christmas
card from the kids that says "I told Santa I already had everything I =
wanted
for Christmas." (inside) "Well, I will when you get here!" Then Zach =
wrote
"Hannah and I are looking forward to spending Christmas with you!"  =
Inside
the card I have put her printed ticket (e-ticket) info and itinerary. We =
are
putting it in with some Red Hat Lady bandadas I picked up and mailing it =
to
her.

Three weeks with my mother...  Should be interesting!

Janet and Donnell King in East Tennessee
Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - 17 months
old!!!
Also Amanda, 21, Jon, 19, Zach, 15, and Caty, 12, who are all just as
special.


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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