[tri-med] Re: To fundo or ot to fundo?

>Anaesthetics are always a concern for our kids - but the good news is that
>despite our anxieties very few actually have problems.


>I hope that my ramble has helped a little in understanding all this. It is
a
>hard call to make, and there are no right or wrong answers. My only advice
>is to listen to your gut. Remember too that doctors are scared of our kids
>simply because they are unfamiliar with them. They expect them to be really
>fragile and for everything to go wrong. In reality they are tough little
>beggars though and provided they are prepared for it to go wrong most of
the
>time they wont need it.

Karen, Thank you so much for all the information!!! You are such a wealth of
information.  I think I understand it a little better.  I also think
Michelle is tougher than the doctors think.  I realize there are risks in
having surgery for her but I also know that we need surgery for at least a
G-tube or I will go crazy reinserting this NG in the middle of the night.  I
am so glad to have all of you to learn from because I know the doctors do
not have any or much experience with trisomy 18/13.  Thanks!

Ann mom to Sarah (11), Beth (9), Mark (6), Brian (4) & Michelle T18 (4
months!) wife to Joel
Overland Park, Kansas, USA

"I know God will not give me anything I can't handle. I just wish that He
didn't trust me so much."
Mother Teresa

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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