[tri-med] Re: To Fawna Re: Polycose

Janet, 

>We were before the hospital but we also were 
>hassling with the insurance company over 
>getting Micro Lipids to add to her formula. 
>That was finally approved (via a back door 
>approach - the insurance company's case manager 
>has been absolutely wonderful!) 

Sounds even better.  We weren't given that option.
Of course I am talking the dark ages of trisomic park
era here for Princess Phil's experience.

>So at this point, no more Polycose. (And we had just 
>opened a new can!) 

Hang on to it.  If you ever temporarily run out of the
lipids maybe you can us it as a substitute.  We had 
occasional back order times for both the Polycose and
the Gerber Beef Heart formula.

>Right now the only measurement she is lagging on is 
>weight... length, head size, all that is in the normal 
>range. Weight isn't even on the curve for her age. 

Princess Hannah is doing very well then.  Philina's
length/height didn't really improve until after we put
her on crushed Tums for extra calcium (our Ped's idea).

>And you would figure that a child not gaining weight 
>"properly" would start to get real weak. No... not 
>this kiddo! All the nurses commented on how strong she 
>was. She would put up a real fight when they had to 
>suction or do something that required restraining her. 
>It would usually take 2-3 people to restrain all the 
>flailing limbs. Princess Hannah was NOT amused!

Phil either.  We've been there, done that.  I usually
hold the legs and lay over her lower body.  But sometimes
it's just me to do the holding.  And then depending on who
I'm holding for determines how good a job I do.  The old
ENT who could never remember who we were, what kind of 
insurance we had and thus what antibiotics it would cover,
which ones she was allergic to, and always made her ears
bleed when he examined her, got a good sound kick in the 
crotch from 4 yr old Miss P once.  Then I moved her to Dr 
Pransky's care.  She's never kicked him....

Fawna, mom to Thom & Rhonda, Lara and
Philina 20 (PT6p & Moya Moya Syndrome),
wife of Doug, 12 >^..^<, 3 llamas, 2 tortoises,
& 1 turtle, Philina's Pharm Bengal Cattery
Escondido, CA., USA
http://home.mindspring.com/~fawna33/index.html
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