[tri-med] Re: To Be A Rabble Rouser or Not?

<< So what do you guys think? Fight for whats right and 
all those who travel the road behind us. Or just bury my 
head in the sand? I am grateful for those who have fought 
the good fight befoere us and from which we benefit.  And 
grateful isnt strong enough a word. But I am tired of the 
fighting for every inch. >>

Karen,

If you've got the energy fight for it!  I buried my head 
in the sand for far too long, and too often too on the 
respite issue.  But like Nan says, those respite weekends
have real benefits for both parent and child.  A fight now, 
when you're this close, got right on your side, and a lot of 
official strength behind you, could just avoid total burn out 
later.  And Nan's right about that too...it will just be harder 
later to find the energy to fight this battle when your burnt 
out.

Princess Phil just completed her first year back in the
respite camp system.  (I'd yanked her out of it when she
needed the aortic valve transplant, and it's aftermath.)
And we had to start back at square one getting her accepted
and reestablished.  Don't plan on ever letting that happen 
again.  

>Anyway, Now that she has been going regularly for two or three 
>years, I LOVE it. I look so forward to that weekend and I hardly 
>ever do anything exciting. Just the thought of two nights and a 
>whole day and a half that I don't have to worry about her is 
>wonderful. And if Fawna and I are on track about making plans for 
>dinner out on the way to camp, it is even more fun.

Yes, we DID do that once with the girls.  Of course even then Nan
had to leave for about 20 minutes after we'd ordered to go pick up
Dom from work, and drop off him & food to Chris.  

Fawna, mom to Philina 21yrs (PT6p & Moya Moya Syndrome)
http://home.mindspring.com/~fawna33/





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