[tri-med] Re: Thyroid problem or growth hormone problem

----- Original Message ----- 
From: <SHAMOND73@xxxxxxx>

> Jason went to the GI yesterday and it seems he has not grown in length or
> head size in the last 3 months.
>
> The dr is concerened as he has gained weight, so it is not because of
> mal-nutrition. Anwyay, so he said it could be thyroid or GH, anyone deal 
> with  this
> before??


Yes, Alex was diagnosed as GHD (growth hormone deficient). He started GHT 
(growth hormone therapy) as a result.

Also, as a newborn/infant Alex was clinically hypothyroid (low thyroid). Had 
had the symptoms but the lab results were 'normal'. Our dr didn't put much 
faith in that because the lab values were for adults and not 
infants/children. And he went more by physical manifestations vs what a lab 
test said.
So Alex was put on Synthroid, lowest dose, as a precaution. In infants 
hypothyroidism can cause mental retardation along with other things. And 
giving him the thyroid med wouldn't hurt him EVEN if he didn't need it. So 
we, being the looking outside the bounds kind of folks, erred on the side of 
caution.

Also, keep in mind that when we were dealing with all of these issues there 
was no Internet. Alex was born in 1986.  :-)
Would have made our lives easier if we'd have had THAT resource to add to 
our limited arsenal back then!

Michelle mom to Alex (21, partial trisomy 14 mosaic) and Molly (18)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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