[tri-med] Re: The Honest Truth About T-18


Deb:

You of all people are an inspiration to everyone.
Who....I ask you...WHO has TWO (count them)
special needs children?

Most people can't even deal with ONE special needs
child, and here you are, a loving Mother (yes, I know
you yell at the kids and so do I at times), but you
LOVE them like nobody's business and take such
great care of your family.  I am in awe of you...
and I have to say, there are few people, if ANY,
that I am in awe of (me and my big ego).

I am so proud of you, Deb!  There is little to
no support where you're at geographically and
you're able to juggle and meet everyone's needs
with little to no help.

Someday, someone, someway, somehow....you
need to be taken on the vacation of a liftetime
and pampered beyond belief.

Whatever happened to that guy who did "Lifestyles
of the rich and famous?  (Robin Leach?).  That's
who we need....

Luv ya Deb!

--Linda Adams

joseph salter wrote:

> Ya Hoo Linda...I loved your closing titles...made me laugh outloud...as you
> are not alone in those titles...I too wear all three titles well!
>
> Well stated letter...I believe there are many of us on this list who have
> been to the far reaches of the universe for our children, have succeeded in
> giving them the best care, and have educated ourselves and others along the
> way.  Our stories may be different, yet similar in many ways too, and all
> are equally important for the details and information that we can give to
> each other as well as the support we share.
>
> AS for SOFT...I believe if it had not been for the parent networking that
> SOFT shared and allowed to occur, that Karen Schuler would not have learned
> about SOFT and some of the other parents, but you can bet that SOFT had
> nothing to do with setting up a list serv for families to share, that was
> all Karen and her wonderful love for others.  Karen's strength and her
> compassion for all of our trisomy families led her to start a list for
> families.  She had a vision and without her determination, this list would
> not of occurred and would not still be up and running today.  Karen deserves
> all the credit for families being able to make contact with another person
> who understands the world of trisomy life
> within minutes of getting on the world wide web.  SOFT still remains a good
> resource in the information field for families who may not want to extend
> theirselves to a actual person or voice on the other end, and for some of
> the other things that they stand for, but I believe with all my heart that
> more is shared through this list and the relationships that have been
> created by its existence than anything that SOFT has been able to do through
> newsletters or conferences.
> Some may not share my view points on the matter, but after almost 10 years
> of dealing with the facets of trisomy 18, having knowledge of SOFT and this
> list since it's beginning, I believe I am right.
>
> Ok, off my soap box.
> Linda I am glad you are back here and I too am outspoken and disliked at
> times..but I don't care.  I speak the truth and that is what matters in the
> long run.
>
> Take care,
>
> Deborah Salter
> >
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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