[tri-med] The Dream of the Perfect Child
- From: "Karen Schuler" <trisomy@xxxxxxxxxxx>
- To: "Tri-Med" <tri-med@xxxxxxxxxxxxx>
- Date: Mon, 29 Oct 2007 16:30:04 +1100
Sorry again for my absence, I am totally consumed by my research at the moment
(thinking and researching trisomy 24/7). I do have a question though - does
anyone have the book The Dream of the Perfect Child by Joan Rothschild? Or
Quality of Life and Human Difference.
I can only find one review of the Dream book and it sounds great.
This is a provocative, historically informed inquiry into the effects of
prenatal testing on pregnancy and public attitudes toward disability. Joan
Rothschild argues that, beginning in the 1970s, women's experience of pregnancy
underwent far-reaching transformations as a result of the expanded use of
ultrasound, amniocentesis, and genetic testing. Prenatal testing held out to
women the prospect of bearing children free from inheritable and congenital
diseases, defects, and deformities. Yet far from providing reassurance and
increasing maternal control over the birth process, prenatal diagnostic
practices had the unintended effect of intensifying pregnant women's anxieties
and making the fetus, rather than the mother, the focus of medical attention.
Testing fostered the illusion of control, while, generally, the only options
parents had were to continue or to terminate a pregnancy. Prenatal testing also
carried profound implications for thinking about disabilities and physical
imperfections. It inspired efforts to screen not only "at-risk" mothers
(usually defined as those over the age of thirty-five or those who had given
birth to a child with a disability) but all pregnant women, and it encouraged
an attitude among some physicians, genetic counselors, and parents that
disabilities, far from being a natural part of human difference, should be
avoided at all costs and that imperfect pregnancies should be terminated.
The second sounds like its written in "academicese".
They are available on Amazon but as I would be buying from overseas it makes it
a significent purchase and I was wondering if anyone had already read them and
could give me an opinion?
Life consists not in holding good cards but in playing those you hold well.
-- Josh Billings
Keep Looking For Rainbows!!
_--_|\
/Karen \
\ _.--._ /
v Karen, Mum to Alex (13 years, T-18 Mosaic) I really must change
that signature!!
http://members.optushome.com.au/karens
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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