[tri-med] Re: Tetrasomy 18p

i show the latest tetra18p coordinator is
shives@xxxxxxxxxxxxxx

pls let me know asap if this doesnt work for the mum and i will get another 
email addy or phone!
jude, mom to derek-18, kelsey-16
and kameron-7-full t18
golden, colorado usa
http://jude-pix.fotopages.com
http://home.comcast.net/~jfwolpert2

----- Original Message ----- 
From: "Karen" <karens@xxxxxxxxxxxxxxxx>

> Jude,
> Could you send me the contact details for the tetrasomy person within the 
> registry please.
> I have just had a call from a mum local to me who has a 15 month old son 
> with Tetrasomy 18p and she is lost, and angry and could do with some 
> knowing that she isnt alone.
> There are a lot of similarities with her son and Alex but we all know that 
> knowing of others with the "same" diagnosis is also cathartic in those 
> early days.
>
> Are there any tetrasomy families on the list at the moment?? and who would 
> like to speak with this mum??

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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