[tri-med] Tetrasomy 18p

Jude,
Could you send me the contact details for the tetrasomy person within the 
registry please.
I have just had a call from a mum local to me who has a 15 month old son with 
Tetrasomy 18p and she is lost, and angry and could do with some knowing that 
she isnt alone.
There are a lot of similarities with her son and Alex but we all know that 
knowing of others with the "same" diagnosis is also cathartic in those early 
days.

Are there any tetrasomy families on the list at the moment?? and who would like 
to speak with this mum??

Only as high as I reach can I grow,
    Only as far as I seek can I go,
Only as deep as I look can I see,
    Only as much as I dream can I be.
         -Karen Ravn-

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (10 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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