[tri-med] Re: Tess

 
i am keeping Tess in my thoughts and prayers for a full and  speedy 
recovery.........good luck with the GI issues.
 
Sharon
mom to Jason T17p mosaic, 11 months old, Lauren almost 3, and wife of Sam  
for 7 years
 
 
 
In a message dated 5/16/2008 10:16:27 P.M. Eastern Daylight Time,  
jknowd@xxxxxxxxxx writes:
Tess has  spent the week in Mt Druitt hospital again, after bouts of 
vomiting with  old blood. She is back on the feeding pump again, 62 
mls per hr, but not  from 10pm till she wakes up am, as she was too 
disturbed by the pump  during the night. The ped thinks (he stressed 
that it was just HIS  thoughts), that she is reacting to the mic-key, 
as it is pulling her  stomach out of shape because it is tethered in 
three placed now instead of  two, making it almond shape instead of 
round,  that could be causing  her discomfort from reflux or other 
unknown (at this stage) pressure, due  to her scoliosis. He said to 
wait to see if this happens again, and if it  does, then it's back to 
the gastro doc, and back to the drawing board, so  to speak. I spent 
the morning with her yesterday. I did manage to get some  smiles from 
her. She is such a tolerant little girl and puts up with most  
procedures without a murmur, but absolutely hates when they take her  
temp under her arm, and wriggles and pushes their hands away (can you  
believe that), but only frowns when they stick a canula in her hand 
to  get blood. She is with Daddy this weekend, so I'll see her this 
evening  when we go over for dinner.

Please keep Tess in your thoughts and  prayers for a quick recovery 
and NO MORE BLOOD PROBLEMS  PLEASE.

Jocelyn, loving Nanna to Tess with Trisomy 18, age 11  years







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