[tri-med] Re: Teasing

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> ----- Original Message ----- 
>- and what never ceases to amaze me is the 
> fact that I am always learning. 

 Karen you are so right I too am learning so much through Cody and watching how 
his sibs react to different situations.  I wish sometimes I did not react the 
way I do, I am getting better but it's hard when you see someone hurting one of 
our babies.

> When Alex was only one year old I made a conscious decision to mainstream 
 We tried mainstreaming with Cody...it is NOT for him.  I truly believe that it 
is for some kids and not for others.  I am very happy for Alex that it works 
for him.  I wish sometimes it would work for Cody, Meagan would love to have 
him in her school. 

> I wanted Alex to be treated normally, to be one of the kids. 
> But you know what - he isn't. Alex is Alex and he can't be Dylan, or Peter or 
> Michael or Jake. Alex is Alex. And Alex will always be different, will 
> always need supervision at the very least. 
I HEAR YOU LOUD AND CLEAR my husband is so good at calming me down about things 
like that.  I'll say something like I wish Cody would just play with the other 
kids, or I wish he could just go over to someone's house and play or at least 
get an invitation so I could for once just explain that I would have to come 
along or he could not go because he needs to be watched like a hawk.  Paul 
gently looks at me and says "Tracy is Cody happy and I say yes he then says 
well if he's happy what are you worried about"?!  He's right that little boy is 
so happy he loves being alone and that's okay.  Sometimes it hurts but it's 
okay.

> He is a sweet and loving child but that also makes him vulnerable. 
Cody is also sweet and loving but people tend to treat him like a two year old 
and he is 9.  I guess that is something else I'll have to work on.  But the 
people that do it the most are our family members.  And sometimes that ticks me 
off.  
I hear you, all of our children are special but our little miracles need more 
of us and sometimes that is hard on their sibs as well.

Thanks Karen for sharing you made me feel good and not so alone in this big 
world.  We as moms have to sit back sometimes and it is darn hard
Tracy mom to Cody (Trisomy 9p)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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