Michelle/Sharon/Penny:
Michelle, you covered all the points I was going to mention so I second your
email. Also, something else came to mind as I read Penny's (sending major hugs
to you Penny!) Sometimes I have found that when we are in the most stressful
and crazy times, our strength is in full force--we feel like strong and mighty
warriors . . . then as times calm down (Sharon) . . . that's when you can
really feel the weight of all that has happened and also have time to worry
about the future. I find that I actually get less sleep when things are going
right because I think "What's going to happen next . . . when." I haven't had
a long span of quiet times for the past 15 plus years. But most importantly,
we have to be open on this forum. And you should never appologize for your
feelings here. Like Michelle said, we've all had these thoughts, feelings, and
questions. But we are here to help each other through them in hopes that we
can assure you that you are completely justified and
to hopefully help you through those times so that you will be here to pick us
up when we are falling!
I will be praying for you all today! Nanci
jwaite <jwaite@xxxxxxxxxxxxx> wrote:
----- Original Message -----
From:
Because i just don't understand this
> world. Its just not a happy place for me anymore.
> i have not felt this way in a while- so i guess i have had a few good
> weeks
> and should be grateful for that.
Hey Sharon,
1. You can see it's not called the trisomy rollercoaster for nothing!
2. Don't beat yourself up, you are doing the best you can for you and your
family in your UNIQUE situation.
3. Everyone here has days/weeks/months of those hellish times when you just
can't seem to catch a break or see the light at the end of the tunnel.
That's when this list is helpful as generally somebody will lend you a
flashlight to get you through.
4. Don't apologize for feeling the way you feel (even if you think you
should rise above it). Your feelings are valid and therefore reasonable.
Don't let anyone tell you otherwise.
Michelle mom to Alex (21, partial trisomy 14 mosaic) and Molly (17)
MichiganUSA
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line