[tri-med] Re: TV program related to rare chromo disorder

Hi Thea,
I was wondering if you could email me the names of the Doctors that will be at 
the conference.  And also a layout of what will be happening while we are there!
Paul and I are trying to fit it into our summer!

Thanks 
Tracy Verheyen mom to Cody (Trisomy 9p)

We talked to other day on the phone.

-------------- Original message -------------- 
From: Thea <haidensmom@xxxxxxxxxxxxx> 

> Can anyone tell me if there was a program related to rare chromosome 
> disorders 
> on a channel like TLC or Discovery or anything similar? I thought someone had 
> mentioned that before and I wanted to see if I could look the program up. 
> 
> Take care- 
> Thea, mom to Haiden (6 yrs old: T9p but doesn't know it...4-wheeler rider, 
> risk-taker (loves to race and take corners too fast), horseback rider 
> (actually 
> a true cowboy b/c he held on through 3,count em' three bucks before he was 
> thrown! Then, got back on and showed that horse who was boss.) adventurer 
> (esp 
> finding fairies w/ his granny) but most of all...the sweetest, most loving 
> son a 
> mother could ask for!, Ava (18 beautiful months going on 5, loves to shop, 
> esp 
> for shoes, make-up is her best crayon, even though she can be frilly, she 
> loves 
> to get dirty helping her daddy! and the most beautiful little girl in the 
> world!, and wife to Brian (almost 8 years. He's my partner, my friend, and 
> the 
> best husband and father ever. I am already so very lucky that I wouldn't 
> change 
> my life for the world!!!!) 
> Optimism is the faith that leads to achievement. Nothing can be done without 
> hope and confidence!~Helen Keller 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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