[tri-med] Re: TRIS
- From: Fawna <fawna33@xxxxxxxxxxxxxx>
- To: tri-med@xxxxxxxxxxxxx, tri-family@xxxxxxxxxxxxx
- Date: Sat, 27 Dec 2008 15:12:01 -0500 (EST)
>I KNOW someone sent me another part of the TRIS survey recently to remind me
>about a previously sent reminder.
>
>Well.I forgot AGAIN! Can someone please resend whichever part it is.PLUS my
>password or ID or whatever it is I need??
Penny,
It's not my part of the project! You're done here until this coming march,
when your 2nd annual follow-up (tracking) will be ready to go. But it looks
like one of our student helpers, Katie, sent you a 'Family Support Survey'
request. I'm not involved in that portion of the project, but I can resend her
original e-mail to your personal addy, and you can take it from there.
Fawna, mom to Philina 25 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes
(TRIS) project - We are currently enrolling all varieties of rare
trisomy, living & deceased, for the main project database. To
include your child's data and help update the medical literature
please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page
please see: http://www.livingwithtrisomy.org/
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
Other related posts: