[tri-med] Re: THANK YOU

I knew there was another one:  thanks to Deb telling us about the problems
with Claire's Rx, we caught a potentially deadly error with one of Audrey's
prescriptions.  They had more than doubled the strength of her diuretic!  If
we had given her the dosage as it was, she could have had serious problems!

See, you guys are just the greatest!


Sherry

1 Thessalonians 5: 16-18 "Be joyful always, pray continually; give thanks in
all circumstances, for this is God's will for you in Christ Jesus.

Visit us on-line at:  http://hometown.aol.com/alohagagirl/index.html   Don't
forget to sign the Guestbook!


Do you shop online? Year-round shopping is an easy way to help support our
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your cart and credit Trisomy 18 Support Foundation during check out. A
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----- Original Message ----- 
From: "Kevin and Sherry Upson" <kupson@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, March 31, 2004 2:25 PM
Subject: [tri-med] THANK YOU


> I have to say a BIG THANK YOU to everyone on this list.  Not only do I get
support knowing we are not alone out there, I get lots of info no one else
(read:  non-tri family) seems to know.
> Even though Audrey almost died from an RSV infection (went Full Code and
put on ventilator) in November, I had to ask my doctor about getting her the
RSV shots...
>
> When she went full code, they told me it was probably caused by a seizure.
She was put on Phenobarbital.  After reading Philina's story, I inquired
about the sense behind that, since Audrey had never before or after shown
any signs of seizure activity.  She will be completely weaned in a few days.
She is less tired, more alert and has made significant strides in
development since weaning began.  And, they never told us that it could
contribute to congestive heart failure (which we constantly battle anyway!).
>
> Just found out today about the Katie Becket waiver (have to go inquire
about that).  We were told we didn't qualify for disability because of
income...
>
> Would not have know about possible malrotation of Audrey's bowels before
reading posts.  Had to ask doctor to get a referral.  Got tested Monday (she
does have a malrotation, but does not seem to be the source of discomfort or
failure to thrive... ).
>
> Found out about Lacrilube for our little possessed child (looks possessed
when she sleeps with her eyes open and rolled back!)  Ophthalmologist agreed
it was a good idea.
>
> I'm sure there are more examples, just can't think of them at the moment!
>
> I just can't tell you guys how much we appreciate this board and how
blessed we feel to be a part of such a wonderful, caring group.
>
>
> THANKS AGAIN!!!!!
>
>
> Sherry
> Wife to Major Kevin
> Mommy to the best big brother in the world (IMHO), Hunter (4) and Audrey
(5.5 months, full T-18, our little miracle!)
>
> 1 Thessalonians 5: 16-18 "Be joyful always, pray continually; give thanks
in all circumstances, for this is God's will for you in Christ Jesus.
>
> Visit us on-line at:  http://hometown.aol.com/alohagagirl/index.html
Don't forget to sign the Guestbook!
>
>
> Do you shop online? Year-round shopping is an easy way to help support our
work for Trisomy 18 families .  Go to www.iGive.com, simply log on, fill up
your cart and credit Trisomy 18 Support Foundation during check out. A
percentage of your purchase goes directly to T18Support!  iGive merchants
include: Hallmark, Adidas, Bath and Body, Discovery Store, Ann Taylor, Apple
Store, Barnes and Noble, Best Buy, Circuit City, Coldwater Creek, Gap,
Gateway, Expedia, Lands End, LL Bean, Office Depot, Red Envelope, Sephora,
Sports Authority, Staples, Target, and many more!
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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