[tri-med] Re: T-18 help


>>>>>>>..Hi!  My name is Tara and I have a 9½ month old daughter,
Olivia, with full T-18.  I would love to ask you a question.  Olivia has
just been diagnosed with Pulmonary Hypertension.  She was born with a
PDA.  No other problems.  The PDA has now basicaly closed on its own.  I
would just like to know your thoughts on the PH.  The doctor seems to think
"this will be what gets her".  He felt it would just get progressively
worse.  She is on viagra now.  I am just wondering if you have any insight
or things you might have done different.  I do not want to look back and
wish I could have done more.  I just want to make sure that I do everything
I can!  Thank you so much for your time!>>>>>>>>>>>>>>>>


Welcome Tara


I am sorry you have to be hear but you have come to the right place. I don?t
have any first hand Knowledge about PH but others on this list do and I am
sure they will be able to answer some of your questions.


Susan Mom to Rebecca T18 M 6/6/91-5/2/06 and Mark ADD/LD age 16




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