[tri-med] Re: T-18 help

Thank you so much for the reply.  She has just been diagnosed with PH within 
the past 2 months.  She isn't on oxygen (except at night).  She has had no 
problems with it but we had another heart echo today and it showed that the 
pressure has risen slightly.  He has upped her viagra dose hoping this will 
get it under control.  My head is still spinning from the bad news today.  
This is the only problem that Olivia has.  I just am not sure how big or small 
of a problem it is !?!  The doctor is great but he tends to be all doom and 
gloom! 
Tara



-----Original Message-----
From: loganfamily <loganfamily@xxxxxxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Mon, 22 Sep 2008 7:17 pm
Subject: [tri-med] Re: T-18 help




-----Original Message-----
From: taraforte@xxxxxxx
Subject: [tri-med] T-18 help
>
Hi!�  My name is Tara and I have a 9�½ month old daughter, Olivia,� with 
full 
-18.� � I would love to ask you a question.�  Olivia has just been 
diagnosed 
ith Pulmonary Hypertension.
Welcome Tara & Olivia! My daughter, Mari has pulmonary hypertension, open pda, 
arge vsd, small asd, and a tricuspid aortic valve.  She just turned 7 this past 
ugust.  Her PH has only been an issue when she gets very ill.  Her cardiologist 
as suggested her pda may be acting like a "pop-off" valve for the PH, but he 
eally doesn't know.  Most docs are amazed at her color and activity level based 
pon her heart condition.
What20problems is Olivia having with her PH?
lovingly,
hris

Chris
ife to Pat, mama to Dalton 16yo, Darby 13yo, McKensie 12yo, and Mari 6yo (full 
18, dob 8/24/01 & The only one who always likes me....unless I'm trying to wipe 
er nose or brush her teeth!)
ipp City, OH  USA
http://www.benotafraid.net/story.asp?id8
ttp://web.coehs.siu.edu/Grants/TRIS/
ww.trisomyonline.org
ww.trisomy.org
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