[tri-med] Re: T-18 help

Tara,

Sorry, but attachments aren't allowed on the list to protect us all from
possible virus, so a picture won't come through.

>Olivia has just been diagnosed with Pulmonary Hypertension.  She was born
with a PDA.  No other
>problems.  The PDA has now basicaly closed on its own.  I would just like
to know your thoughts
>on the PH.  The doctor seems to think "this will be what gets her". 
He felt it would just get
>progressively worse. She is on viagra now. 

The Viagra will slow it down, but something is wrong with this picture!
They need to figure out what's causing the hypertension.  The doctors
thought that my daughters PDA had closed on it's own, until she went into
congestive heart failure at around 9 months of age.  They ordered a heart
cath to see why, and the catheter slipped through her still wide open PDA.
These days a PDA, if that's in fact all it is, is a fairly simple fix that
can be done in the cath lab, with just a one night stay in the hospital.

Fawna, Research coordinator TRIS Project, mom
to Thom & Rhonda, Lara, & Philina 25yrs (PT6p
& Moya Moya Syndrome), Escondido, CA USA
http://home.mindspring.com/~fawna33/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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