[tri-med] Re: T-18 help

>>>>As for the PH, can they live with this for years or is it a sudden death
thing?<<<

Not up on the stats but my friends son who does not have t18 but does  have
a related disorder ( undiagnosed as does his brother and nephew) has PH and
has had it ever since I met them ( she was the SOFT rep in my area) which is
17 1/2 ago, ( which would make him about 26)  He is on oxygen at night and
his O2 sats can be quite low, physically he can do much less than his
brother who has the same syndrome. 


Susan Mom to Rebecca T18 M 6/6/91-5/2/06 and Mark ADD/LD age 16




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