[tri-med] T-18 help



Hi!  My name is Tara and I have a 9½ month old daughter, Olivia, with full 
T-18.  I would love to ask you a question.  Olivia has just been diagnosed 
with Pulmonary Hypertension.  She was born with a PDA.  No other problems.  
The PDA has now basicaly closed on its own.  I would just like to know your 
thoughts on the PH.  The doctor seems to think "this will be what gets her".  
He felt it would just get progressively worse.  She is on viagra now.  I am 
just wondering if you have any insight or things you might have done 
different.  I do not want to look back and wish I could have done more.  I 
just want to make sure that I do everything I can!  Thank you so much for your 
time!

Regards, 
Tara Torian

PS... here is a picture of my precious Olivia.


 
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