[tri-med] Re: Swallow Study

In a message dated 6/27/2002 7:00:17 PM Eastern Daylight Time, 
pvictor@xxxxxxxxxxxx writes:


> Devon has/had an
> uncoordinated  swallow and liquids tend to get away from him in his
> mouth...he can't control them. The liquid would go past his swallow
> mechanism and then pool back there. Then about 10-15 minutes later the
> pooled liquid would start dripping down his esophogus and windpipe and he
> would start choking...his coughing/choking would sound so bad that anyone
> who had never heard him before thought he needed emergency assistance. It
> sounds like he's going to cough up a lung...literally...even now when he
> coughs it sounds like that. 

Penny,
This sounds just like Brendan, he also had a swallow study done twice to see 
how well he could handle feedings.  The therapist was great, she took her 
time and was very aware of all Brendans difficulties.  She reccommended that 
we continue with the feedings but very cautiously, unfortunately Brendan did 
get pneumonia and at the time thought it was from the oral feeds, so we 
stopped them,  When he got pnuemmonia againwe fiigures out it was from his 
reflux and put him on a continuous feed which means that he is not hungry for 
the oral feeds.  Hopefully we might be able to start them again someday.  He 
coughs as much now I think that he is pooling his saliva and reading your 
post made it seem clearer that that is what is happening, oh but does it 
scare the poop out of my husband when he does it.  


Mikki (Michelle) Rooney  wife of John (8 years)
Mom of Michael (8), Caitlin (5), Siobhan (2) and
Brendan T-13 (10 months)


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