[tri-med] Re: Surgery at Toronto Sickkids for Tri-kids???

Hi Barb.  I was wondering if you would mind if I forwarded this e-mail to some 
friends and family members?  

 

Kim
 
> From: b_farlow@xxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx; tri-wings@xxxxxxxxxxxxx
> Subject: [tri-med] Surgery at Toronto Sickkids for Tri-kids???
> Date: Fri, 17 Apr 2009 01:46:00 +0000
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> Hello friends, 
> 
> We had our big day on Tuesday for the human rights hearing. The Hospital is 
> trying to have our complaint dropped on the basis that we made it past the 
> deadline. 
> 
> There was good reason for that as we spent two years trying to affect change 
> at the Hospital. Then the human rights officer in Geneva Switzerland heard 
> Annie's story and insisted that I make a complaint and appeal to the 
> international level, if need be. 
> 
> As many of you know, there were a multiple number of violations in narcotic 
> procurement, administration and documentations in Annie's final 3.5 hours. 
> Really, it is unbelievable. It was like a narcotic hay-day. It makes me 
> wonder, is it like this for all children at this world class hospital or only 
> the ones with genetic conditions associated with disabilities who die when 
> DNRs that are entered without informed consent? 
> 
> The most serious concern was that 100mcg of Fentanyl ( a lethal dose for a 
> 5.3 kg baby (11lb) ) was removed without a doctors order. The intensive care 
> doctor is willing to testify that it was not administered but was totally 
> wasted. However, there is no record of it being wasted either. 
> 
> The reason I am writing is that one of the things that the hospital has 
> written in their human rights response is this: 
> 
> "The Hospital conducted a review of Trisomy 13 and Trisomy 18 patients at the 
> Hospital between April 1, 2002 and February 28, 2007. During this time 
> period, there were 48 patients with Tri 13 or Tri 18. Of these patients, 11 
> had cardiac interventions (ie surgeries)."
> 
> I am having a difficult time with this statistic. In 2001, a father had this 
> tragical experience at the same hospital with his baby with trisomy 13. He 
> finally got surgery, but it took a whole team of ethicists to support him. 
> (his daughter is alive and well at age 7 now)
> 
> The video may be insightful to those who believe that public health care is a 
> good thing. 
> 
> http://www.youtube.com/watch?v=UNzJt8fbavo&feature=related
> 
> Could you please inform me if anyone remembers anything about a family with a 
> tri-baby having cardiac surgery between 2002-2007 at the Toronto Hospital for 
> Sick Children? 
> 
> I know that SOFT has only one record of cardiac surgery and that is from the 
> family in the video above. 
> 
> I have attached a copy of the media we had about our hearing if anyone is 
> interested. 
> 
> Thank you so much. 
> Barb (Annie's mom)
> www.anniefarlow.com
> 
> 1. Toronto Star Article, http://www.thestar.com/News/GTA/article/618581
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> 2. CTV News clip: http://toronto.ctv.ca/ 
> (put "farlow" in search at the top)
> 
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> 3. Global News clip: 
> http://www.globaltv.com/globaltv/ontario/video/index.html?
> (under infant human rights)
> 
> 
> 
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