[tri-med] Re: Study and kira's recovery (update)

The study that I had Kira on to prevent infection that I posted about was 
stopped because I felt that it was making her tremble by  the Reglan. I noticed 
it the next day the study began, but thought to be because she just woke up as 
she sometimes does at home also. This trembling went on through play time and 
that is very unusual for her. Me and my husband kept thinking why could she be 
trembling that way. I kept telling the nurses but they didn't seem too 
concerned until I told the doctor and asked him if there were any new 
medications started on her recently and he told me no they were all the same. 
My husband was the one that actually pointed out that it could be the Reglan 
and till this day after 3 days of taking her off she has not trembled. So for 
us it did not work. We also got news that she has an infection in her blood and 
fungus in her throat because of the breathing tube. We had already had two 
false alarms thinking that they were going to
 finally take out the tube. Hopefully soon, I am really concern about the 
antibiotic, narcotic and sedative that she is taking. Has anyones child been 
given Gentamicin, Dilaudid or Ativan?
 
Yazmin
Proud mother of baby Kira (18 months)partial trisomy 7p and trisomy 10q, and 
she loves to talk.


----- Original Message ----
From: Yazmin castro <beaunkev@xxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx; trisomy10q@xxxxxxxxxxxxxxxx
Sent: Thursday, March 20, 2008 1:59:23 PM
Subject: [tri-med] Study and kira's recovery

I have more hope now, Kira is doing much better. She isn't trying to fight the 
machine as much and her heart rate is getting steady. I also decided to give 
the study a try, I read all the sideffects and risk and since kira has been on 
reglan before, so  I was a little more comfortable. Her doctor also told me 
that at anytime if my husband and I wanted to stop the study we can do it at 
anytime. Also the other three drugs/protein (sorry don't have the papers w/ me 
to name them) had almost no risk of sideffects so we are going to give it a try 
and see how it goes. I'm guessing there is no other family that was asked about 
this study.
  
Yazmin  
Proud mother of baby Kira (18 months)partial trisomy 7p and trisomy 10q, and 
she loves to talk.

      
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