[tri-med] Re: Study and kira's recovery

We haven't heard of a study, but how wonderful!  Usually when they are to
the point of study, it has had pretty positive results in the past!  The
fact that you were asked seems to be a good indication that your doctors see
Kira as a good risk--something some of the moms here have had to fight tooth
and nail for!  I am glad Kira is doing better.  She sounds like a strong
little girl!


Jennifer Vanderbeek
Boise, Idaho, USA
Mom to Arwen (10); Elanor (8), Trisomy 18; Caregiver to Joe (29), Cerebral
Palsy; and Wife to Andrew (I'm not telling how old he is because he's
younger than me!)

Check out Elanor's CaringBridge site at:

http://www.caringbridge.org/visit/elanoranne 



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Yazmin castro
Sent: Thursday, March 20, 2008 2:59 PM
To: tri-med@xxxxxxxxxxxxx; trisomy10q@xxxxxxxxxxxxxxxx
Subject: [tri-med] Study and kira's recovery

I have more hope now, Kira is doing much better. She isn't trying to fight
the machine as much and her heart rate is getting steady. I also decided to
give the study a try, I read all the sideffects and risk and since kira has
been on reglan before, so  I was a little more comfortable. Her doctor also
told me that at anytime if my husband and I wanted to stop the study we can
do it at anytime. Also the other three drugs/protein (sorry don't have the
papers w/ me to name them) had almost no risk of sideffects so we are going
to give it a try and see how it goes. I'm guessing there is no other family
that was asked about this study.
   
Yazmin  
Proud mother of baby Kira (18 months)partial trisomy 7p and trisomy 10q, and
she loves to talk.

 
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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