[tri-med] Study and kira's recovery
- From: Yazmin castro <beaunkev@xxxxxxxxx>
- To: tri-med@xxxxxxxxxxxxx, trisomy10q@xxxxxxxxxxxxxxxx
- Date: Thu, 20 Mar 2008 13:59:23 -0700 (PDT)
I have more hope now, Kira is doing much better. She isn't trying to fight the
machine as much and her heart rate is getting steady. I also decided to give
the study a try, I read all the sideffects and risk and since kira has been on
reglan before, so I was a little more comfortable. Her doctor also told me
that at anytime if my husband and I wanted to stop the study we can do it at
anytime. Also the other three drugs/protein (sorry don't have the papers w/ me
to name them) had almost no risk of sideffects so we are going to give it a try
and see how it goes. I'm guessing there is no other family that was asked about
this study.
Yazmin
Proud mother of baby Kira (18 months)partial trisomy 7p and trisomy 10q, and
she loves to talk.
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- [tri-med] Re: Study and kira's recovery
- From: Jennifer Vanderbeek
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- » [tri-med] Re: Study and kira's recovery
- [tri-med] Re: Study and kira's recovery
- From: Jennifer Vanderbeek