[tri-med] Re: Strattera

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Fawna Lockwood
Subject: [tri-med] Re: Strattera

I've found every excuse under the sun
to postpone the experiment.  

>>>Kind of like us waiting 7 years with severe sleep deprivation to try the
Trazodone :o) We were/are so afraid of meds for him :o( The Trazodone and
the Melatonin have been a good thing though :o)


  Hope you don't mind my using Devon as our guinea
pig too, but his drug reaction history is similar enough to make him a
relevant defense.


>>> No Fawna...glad we can help...sort of :o) I didn't realize that Devon's
reactions to things were similar to Ms. P's??


  Not that I don't wish him the best on this, it's just
that I've btdt too many times with Miss P not to see the same downsides
that ya'll do.

>>>We don't have a lot of experience with meds...at least not comparing it
to those who's child has heart issues etc... I mean we had to find the right
asthma med when he was small...but once we found the FloVent...BINGO...it's
still working...still effective. It really acts as a preventative for Devon.
He hasn't had his lungs attacked for a long time now. The last time was when
Joe tried to surprise me by taking Devon off the FloVent on his
own...thinking Devon didn't need it. The first cold he got went right to his
lungs...and it doesn't do that when he's on the FloVent every day. The
Trazodone was the first drug we actually worked up the nerve to actually try
for Devon's disordered sleep issues...and thankfully, it worked and is still
working...at the lowest dosage even :o) But the hyperactivity and behavioral
stuff has been a lot more trouble...and a lot more scary :o(

Plus what scares the bejeezers out of me about Strattera, is the
contraindication in the literature for "certain heart and blood vessel
disorders",

>>>Yeah...and see that was the one thing that didn't scare us because Devon
doesn't have that kind of disorder (at least none that has shown up on any
testing). But you know how I love to worry :o) By the way...do you still get
the Cainer's forecast??? I miss them and I still can't manage getting it on
my own :o( I understand if you don't have the time to do that anymore though
:o) Just asking :o)


I don't trust this
neuro any further then I could throw her, but we're stuck with her, as
we've aged out of seeing anyone else in that office, and they're the best
office in the area.


>>>That stinks Fawna!!! I don't think I'd go for something just so she can
use your kid for a guinea pig :o( I wouldn't trust her either.



Miss P tends to get cranky. In fact, some of her worst behavior jags
in high school, I think were actually acting out from "headaches", or at
least "funny feeling heads" from her aortic stenosis and Moya Moya combo.

>>> Yeah...that's what we figure too.


Eventually though we worked on the concept of "hurt" with ASL, and for
several years now she'll point at her forehead and sign "hurt".  Since
her heart valve transplant though, we've had far fewer of those episodes
to deal with.

>>> What's the sign for "hurt"??

Fingers, toes and eyes crossed here,


>>>Now THIS I'd LOVE to see :o) I've had a tiring but satisfying day...I
could use a giggle :o) I mowed 3/4 of our yard...trimmed back a pretty
flowering bush in the front yard...mowed my neighbor lady's front and side
yards while she wasn't home...just cuz I'm a nice person :o) LOL She may not
even notice :o) OH! And I deep cleaned our bathroom too :o) NOW...if I could
just get our cook (yeah right!) to cook us some dinner!!!!! Think I'll
saute' some sliced portabellos and shredded canned crab meat with onions,
garlic and cheese??? Sounds yummy doesn't it??

Love,
Penny...loving & devoted wife to Joe, the best husband in the world...mom to
Nick (16 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy
Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (11
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, & food in
general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper
the Wonder Dog...our 10? year old yellow lab adopted from FL Lab Rescue
12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me
on our trisomy listserv at:
http://www.trisomyonline.org/victor.html      
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our Trooper on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://livingwithtrisomy13.org/album9.htm
AND http://web.coehs.siu.edu/Grants/TRIS/
"Those who matter don't judge me .... those who judge me don't matter."
 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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