[tri-med] Re: Strattera

Penny,

> Today is Devon's first day on one 18mg Strattera.

You're a braver woman then I am!  Philina's neuro has been nagging me
for like 2-3 years now to try her on it.  But knowing how she's thrown
paradoxical drug reactions to just about everything else she's ever
taken (even a few antibiotics), I've found every excuse under the sun
to postpone the experiment.  My biggest one though, that we need a
trans-esophageal echo and okay from her cardiologist first, is about
to run out, as we're in the process of getting one scheduled finally.

So needless to say, I'll be following Devon's experience with it closely.
All pertinent e-mails will be red flagged in case they're needed later as
dissuasion ammunition.  Hope you don't mind my using Devon as our guinea
pig too, but his drug reaction history is similar enough to make him a
relevant defense.  Not that I don't wish him the best on this, it's just
that I've btdt too many times with Miss P not to see the same downsides
that ya'll do.

Plus what scares the bejeezers out of me about Strattera, is the
contraindication in the literature for "certain heart and blood vessel
disorders", and her neuro wanting to try it on someone with stenosis of
the pulmonary valve & carotid arteries, a transplanted aortic valve, and
Moya Moya Syndrome.  Especially the Moya Moya Syndrome, since that's her
own department.  But this neuro doesn't even acknowledge that her
predecessor office partner diagnosed Miss P with that.  I don't trust this
neuro any further then I could throw her, but we're stuck with her, as
we've aged out of seeing anyone else in that office, and they're the best
office in the area.

>the only thing we're worried about is if he gets a headache.how will we
>figure that one out??  I figure he'll get fussy.and maybe quieter.maybe
>he'll even lay down??? I don't know how to teach him to show us when he
>has a headache.

Miss P tends to get cranky. In fact, some of her worst behavior jags
in high school, I think were actually acting out from "headaches", or at
least "funny feeling heads" from her aortic stenosis and Moya Moya combo.
About the only thing that worked then was to give her a Tylenol PM and
tell her to go sleep it off.

Eventually though we worked on the concept of "hurt" with ASL, and for
several years now she'll point at her forehead and sign "hurt".  Since
her heart valve transplant though, we've had far fewer of those episodes
to deal with.

Fingers, toes and eyes crossed here,

Fawna, Research coordinator TRIS Project, mom to Thom & Rhonda, Lara, &
Philina 24yrs (PT6p & Moya Moya Syndrome), Escondido, CA USA
http://home.mindspring.com/~fawna33/


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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