[tri-med] Re: Strattera

Hi Penny
We have no experience to offer but we can do lots of praying that this works 
for Devon.
I feel for you and Joe.
Hugs,
Tracy mom to Cody (Trisomy 9p)
-------------- Original message -------------- 
From: "plugginalongpv" <plugginalongpv@xxxxxxxxxxxxx> 

> Hi All :o) 
> Today is Devon's first day on one 18mg Strattera. Joe and I have been 
> reading up on it and as usual we're worried but hopeful :o( It has the same 
> possible side effects as just about anything we've looked at.heck.even the 
> same ones as the meds I take! Joe's lost sleep worrying about him.but then 
> when he talked to me about it the next day he said that "we're pretty good 
> at recognizing the signs when he's not feeling well, when he's going to toss 
> his cookies, when he gets unsteadi-ER." the only thing we're worried about 
> is if he gets a headache.how will we figure that one out?? I figure he'll 
> get fussy.and maybe quieter.maybe he'll even lay down??? I don't know how to 
> teach him to show us when he has a headache.how to explain to him what a 
> headache is??? The Strattera is not supposed to knock him out.it's NOT a 
> stimulant.and it's supposed to have a calming effect and help with issues 
> like aggression, etc. 
> 
> The instructions we have are to give him ONE 18mg Strattera every morning 
> for 2 weeks. Then up it to TWO 18mg Strattera every morning for 2 weeks. IF 
> we like what we're seeing after the second dosage increase.we can hold at 
> 36mg every morning.if not.we're to increase it another 18mg. Obviously.when 
> we get to a therapeutic dosage, we'll get a script for the proper dosage so 
> he only has to swallow ONE capsule. 
> 
> If anyone has some experience with Strattera, we'd like to hear from you :o) 
> Otherwise.just please send up a small prayer that we'll find the answers for 
> our silly man, Devon :o) 
> 
> As a little post script.I gave him his first pill a little less than an hour 
> ago and he's not asleep with his head drooping or staggering around like a 
> zombie like what happened with his first dose of Chlonidine (and that was 
> only HALF of the smallest dose) !!! That's something :o) But we don't expect 
> to see any real changes for over a week. Hopefully they'll be positive 
> things???? 
> 
> Take care. 
> 
> 
> 
> Love, 
> 
> Penny...loving & devoted wife to Joe, the best husband in the world...mom to 
> Nick (16 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy 
> Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (11 
> yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, & food in 
> general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper 
> the Wonder Dog...our 10? year old yellow lab adopted from FL Lab Rescue 
> 12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me 
> on our trisomy listserv at: 
> 
> http://www.trisomyonline.org/victor.html 
> 
> AND...Devon's moment of glory in Exceptional Parent Magazine... 
> 
> http://www.eparent.com/familiarfaces/ffaces_4_01.htm 
> 
> AND...see our Trooper on FL Lab Rescue's website at: 
> 
> http://www.labradorrescue.net/success/index.html (Look for the name Trooper) 
> AND :o) http://livingwithtrisomy13.org/album9.htm 
> 
> AND http://web.coehs.siu.edu/Grants/TRIS/ 
> 
> "Those who matter don't judge me .... those who judge me don't matter." 
> 
> 
> 
> 
> 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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