[tri-med] Re: Strabismus and more............

In a message dated 05/31/2002 3:42:14 PM Pacific Daylight Time, 
jwaite@xxxxxxxxxxxxx writes:


> I'm more satisfied than dissatisfied.......and wondering if I'm being
> stupid for not going to war. Guess I'd battle up if I thought it was the
> best route but not being sure...........

Michelle:  I'm really glad to hear that you feel mostly satisified.  I can't 
imagine making decisions for a child who is in the "grey" zone.  It is much 
easier when your child is better fitted for one or the other.  

We recently had Emily's IEP.  Last year it was very hard for me because she 
went from the PPI class of 1/2 days to Primary 1 in a elementary building 5 
days a week full-time.  That was a tuff transition for me.  Emily did fine 
with it.  I just had to get use to all the new people and the idea of school 
having her more than me.  It's always in the back of my head about not 
knowing how much longer she will live and when school gets more hours than me 
a day, I question if it's really worth it.  I considered keeping her out of 
school 2 days a week, but my husband reminded me how much Emily loves school 
and that I would be selfish for doing that.  

Now the school year has nearly come to an end.  IT was pretty successful and 
she remained in school 5 days a week.  I got over it!  She really is happy at 
school.  When we IEP'd her into this new school they wrote in for a 
one-on-one parapro due to her frequent tube feedings.  Since I knew they 
would realize throughout the year that it really wasn't that time 
consuming... I figured she would not have the one-on-one for next year.  I 
was shocked at this IEP when they said she most definately needs it.  And it 
has nothing to do with the tube feeding.  She is the only student in her 
class with this level of support.  She is in a center-based program for TMI.  
I'm still swallowing this, but I guess it's best at least for now.  

Anyway, glad to hear you have setteled with all your IEP things.  General Ed 
sounds wonderful!  I hope you can stop worrying at least through the summer.

     
Jennifer - Mom to Emily (5, w/ T13 Mosaic) , Hannah (2) and 2 angels ^i^ ^i^
              Michigan, USA


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