[tri-med] Re: Spanish speaking support needed

Dear Vladimir and Monica,

Would you be so kind and give the mother of a trisomy 18 baby a call and
offer her support.  Her baby is in the NICU at St. Peter's hospital in NJ.
She speaks Spanish and would love to talk to someone with a similar
situation.
Her name is Carminda Diaz and the baby is Karen.  Her phone number is
732-729-4919.  Please let me know how it goes.  I also have some other
mentors who can help if you think she would like to talk to more people.

Thank you and God bless,
Mary Kellett
Prenatal Partners for Life
----- Original Message ----- 
From: "Vladimir Vallenas" <vvallenas@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>; "tri-med digest users" <ecartis@xxxxxxxxxxxxx>
Sent: Friday, June 16, 2006 5:10 PM
Subject: [tri-med] Re: Spanish speaking support needed


> My wife and I are from Peru so Spanish is our first language.  Our
daughter
> Josefina is pT6 (not T18) but we all go through very similar experiences.
> Just drop me an direct email and let us know if we can help that we will
be
> happy to.
>
> Vladimir & Monica - parents of Josefina [pT6] - 5 months old and growing
> beautifully!
>
> ----- Original Message ----- 
> From: "FreeLists Mailing List Manager" <ecartis@xxxxxxxxxxxxx>
> To: "tri-med digest users" <ecartis@xxxxxxxxxxxxx>
> Sent: Friday, June 16, 2006 1:03 AM
> Subject: tri-med Digest V5 #295
>
>
> > tri-med Digest Thu, 15 Jun 2006 Volume: 05  Issue: 295
> >
> > In This Issue:
> > [tri-med] Re: Spanish speaking support needed
> > [tri-med] ethnicity question
> > [tri-med] Re: ethnicity question
> > [tri-med] Re: Caroline update
> > [tri-med] Hannah update - Thursday.
> > [tri-med] Re: Hannah update - Thursday.
> > [tri-med] Re: Hannah update - Thursday.
> > [tri-med] Re: Spanish speaking support needed
> > [tri-med] Re: Hannah update - Thursday.
> >
> > ----------------------------------------------------------------------
> >
> > From: "G&S" <hardyboyz@xxxxxxxxxxxx>
> > Subject: [tri-med] Re: Spanish speaking support needed
> > Date: Thu, 15 Jun 2006 02:32:42 -0400
> >
> >>>>>>>>>>>>>Hi Mary my name is Michelle I am very fluent in spanish. My
> > little boy Carlos passed away April 23, 2006. also T-18. >>>>>>>>>
> >
> >
> >
> >
> >
> >
> >
> >
> > (((((((((((((((Michelle}}}}}}}}}}}}}}}}}}}}
> >
> >
> >
> > Sorry for your loss, we are there right now as well, ( we lost our
> > daughter
> > in February, and its hard.............so I really feel for you
> >
> >
> >
> > Susan mom to Rebecca t18m 06/06/91 - 05/02/06 and Mark age 13 1/2 ADD/LD
> >
> >
> >
> >
> > ------------------------------
> >
> > From: Annee122884@xxxxxxx
> > Date: Thu, 15 Jun 2006 10:24:15 EDT
> > Subject: [tri-med] ethnicity question
> >
> > Hi :)
> > Question: I'm working on a paper for one of my nursing classes, and was
> > wondering if anyone knows of any ethnic/racial links to trisomies. I'm
> > especially
> > intersted in rates for African-Americans.
> > Thanks!
> > : ) Annee, SNII
> > Oh, how the little things
> > Strengthen my  tiny wings,
> > Help me to take on the world,
> > When you love me,
> > There's  nothing I wouldn't try,
> > I might even fly.
> > -Sarah Groves, All Right  Here
> >
> >
> >
> > ------------------------------
> >
> > Date: Thu, 15 Jun 2006 12:37:16 -0400
> > From: dncingqwn@xxxxxxx
> > Subject: [tri-med] Re: ethnicity question
> >
> > i don't know of any specific links but my daughter is 1/2 african
american
> > and 1/2 caucasian.
> >
> > kelly
> > mom to akaiya T18 - the big girl will be 4 in september!
> > www.geocities.com/baby_akaiya
> >
> > -----Original Message-----
> > From: Annee122884@xxxxxxx
> > To: tri-med@xxxxxxxxxxxxx
> > Sent: Thu, 15 Jun 2006 10:24:15 EDT
> > Subject: [tri-med] ethnicity question
> >
> > Hi :)
> > Question: I'm working on a paper for one of my nursing classes, and was
> > wondering if anyone knows of any ethnic/racial links to trisomies. I'm
> > especially
> > intersted in rates for African-Americans.
> > Thanks!
> > : ) Annee, SNII
> > Oh, how the little things
> > Strengthen my  tiny wings,
> > Help me to take on the world,
> > When you love me,
> > There's  nothing I wouldn't try,
> > I might even fly.
> > -Sarah Groves, All Right  Here
> >
> >
> >                  Building ___ooOOoo__ Rainbows
> >                       www.trisomyonline.org
> >                  Families Helping Families On-line
> > ________________________________________________________________________
> > Check out AOL.com today. Breaking news, video search, pictures, email
and
> > IM. All on demand. Always Free.
> >
> >
> >
> > ------------------------------
> >
> > Date: Thu, 15 Jun 2006 10:55:21 -0700 (PDT)
> > From: Michelle Wilson <mewildflower1@xxxxxxxxx>
> > Subject: [tri-med] Re: Caroline update
> >
> >
> >
> > Irene, I just read your post and it is a week old
> > almost.  How is Caroline doing now?
> >
> > Peace and good will toward all things,
> > Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
> > Faren(t18,  5 1/2 yrs old!!), the Barbarian aka "The Booper" and Quenby,
> > aka Poopie Chew. Oh, and wife to Rickeeeeee!
> >
> > Patriotism is supporting your country all the time and your government
> > when it deserves it.   -Mark Twain
> >
> > Oh, to have a lodge in some vast wilderness, where rumors of oppression
> > and deceit, of unsuccessful and successful wars may never reach me
> > anymore.   -William Cowper, poet
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Tired of spam?  Yahoo! Mail has the best spam protection around
> > http://mail.yahoo.com
> >
> > ------------------------------
> >
> > From: "Janet King" <jlvking@xxxxxxxxxxxxxxxxxxx>
> > Subject: [tri-med] Hannah update - Thursday.
> > Date: Thu, 15 Jun 2006 15:17:50 -0400
> >
> > Well, we're home! Hannah is still on O2 but we have the generator so =
> > that
> > isn't a problem. Our pharmacy is trying to figure out how to create what
=
> > the
> > doctor is ordering for her Baclephen (or however you spell it. I don't =
> > have
> > the papers in front of me.) they upped her from 1/2 tab (5 mg) twice a =
> > day
> > to a full tab (10 mg) 3 times a day to 12.25 3 times a day. When they
> > changed to the 12.25 it started coming as a liquid. Evidently the =
> > hospital
> > pharmacy was mixing it. Our pharmacy isn't a compounding pharmacy so =
> > they
> > were going to check on it to see if they could just mix it or if it had
=
> > to
> > be compounded. So we'll get that later today.
> >
> > Hopefully this hospitilazation will sway the state to cover the vest
> > machine!=20
> >
> > Zach just turned on the monitor and Caty and I can hear her pulse ox
> > beeping. Caty just commented that she really missed hearing Hannah =
> > bubble.
> > :)
> >
> > Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
> > looks
> > so much more comfortable in her own bed too!
> >
> > Janet and Donnell King in East Tennessee
> > Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - 3 years
> > old!!!
> > Also Amanda, 23, Barry (the child formerly known as Jon), 20, Zach, 17,
=
> > and
> > Caty, 14, who are all just as special.
> >
> >
> >
> > -----Original Message-----
> > From: Michelle Wilson [mailto:mewildflower1@xxxxxxxxx]=20
> > Sent: Thursday, June 15, 2006 1:55 PM
> > To: tri-med@xxxxxxxxxxxxx
> > Subject: [tri-med] Re: Caroline update
> >
> >
> >
> >
> > Irene, I just read your post and it is a week old
> > almost.  How is Caroline doing now? =20
> >
> > Peace and good will toward all things,
> > Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
> > Faren(t18,  5 1/2 yrs old!!), the Barbarian aka "The Booper" and Quenby,
=
> > aka
> > Poopie Chew. Oh, and wife to Rickeeeeee!
> >
> > Patriotism is supporting your country all the time and your government =
> > when
> > it deserves it.   -Mark Twain
> >
> > Oh, to have a lodge in some vast wilderness, where rumors of oppression
=
> > and
> > deceit, of unsuccessful and successful wars may never reach me anymore.
> > -William Cowper, poet
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Tired of spam?  Yahoo! Mail has the best spam protection around=20
> > http://mail.yahoo.com=20
> >                  Building ___ooOOoo__ Rainbows
> >                       www.trisomyonline.org
> >                  Families Helping Families On-line
> >
> >
> >
> >
> >
> >
> > ------------------------------
> >
> > From: "jwaite" <jwaite@xxxxxxxxxxxxx>
> > Subject: [tri-med] Re: Hannah update - Thursday.
> > Date: Thu, 15 Jun 2006 15:27:15 -0400
> >
> >
> > ----- Original Message ----- 
> > From: "Janet King" <jlvking@xxxxxxxxxxxxxxxxxxx>
> >> Zach just turned on the monitor and Caty and I can hear her pulse ox
> >> beeping. Caty just commented that she really missed hearing Hannah =
> >> bubble.
> >> :)
> >
> > LOL
> >
> >> Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
> >> looks
> >> so much more comfortable in her own bed too!
> >
> > Glad you're home and hope that Miss Hannah lets you stay there for a
long,
> > long while!
> >
> > Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (15)
> > MichiganUSA
> >
> >
> > ------------------------------
> >
> > Date: Thu, 15 Jun 2006 15:31:41 -0400
> > From: Debbie <debbwebb@xxxxxxxxx>
> > Subject: [tri-med] Re: Hannah update - Thursday.
> >
> > AAAaaaaaahhhh ! ! !
> > Thanks so much for the update... I needed that!
> >
> > Debbie, mom to Claire (t18)
> >
> >
> > On 6/15/06, Janet King <jlvking@xxxxxxxxxxxxxxxxxxx> wrote:
> >>
> >> Well, we're home! Hannah is still on O2 but we have the generator so =
> >> that
> >> isn't a problem. Our pharmacy is trying to figure out how to create
what
> >> =
> >> the
> >> doctor is ordering for her Baclephen (or however you spell it. I don't
=
> >> have
> >> the papers in front of me.) they upped her from 1/2 tab (5 mg) twice a
=
> >> day
> >> to a full tab (10 mg) 3 times a day to 12.25 3 times a day. When they
> >> changed to the 12.25 it started coming as a liquid. Evidently the =
> >> hospital
> >> pharmacy was mixing it. Our pharmacy isn't a compounding pharmacy so =
> >> they
> >> were going to check on it to see if they could just mix it or if it had
=
> >> to
> >> be compounded. So we'll get that later today.
> >>
> >> Hopefully this hospitilazation will sway the state to cover the vest
> >> machine!=20
> >>
> >> Zach just turned on the monitor and Caty and I can hear her pulse ox
> >> beeping. Caty just commented that she really missed hearing Hannah =
> >> bubble.
> >> :)
> >>
> >> Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
> >> looks
> >> so much more comfortable in her own bed too!
> >>
> >> Janet and Donnell King in East Tennessee
> >> Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - 3 years
> >> old!!!
> >> Also Amanda, 23, Barry (the child formerly known as Jon), 20, Zach, 17,
=
> >> and
> >> Caty, 14, who are all just as special.
> >>
> >>
> >>
> >> -----Original Message-----
> >> From: Michelle Wilson [mailto:mewildflower1@xxxxxxxxx]=20
> >> Sent: Thursday, June 15, 2006 1:55 PM
> >> To: tri-med@xxxxxxxxxxxxx
> >> Subject: [tri-med] Re: Caroline update
> >>
> >>
> >>
> >>
> >> Irene, I just read your post and it is a week old
> >> almost.  How is Caroline doing now? =20
> >>
> >> Peace and good will toward all things,
> >> Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
> >> Faren(t18,  5 1/2 yrs old!!), the Barbarian aka "The Booper" and
Quenby,
> >> =
> >> aka
> >> Poopie Chew. Oh, and wife to Rickeeeeee!
> >>
> >> Patriotism is supporting your country all the time and your government
=
> >> when
> >> it deserves it.   -Mark Twain
> >>
> >> Oh, to have a lodge in some vast wilderness, where rumors of oppression
=
> >> and
> >> deceit, of unsuccessful and successful wars may never reach me anymore.
> >> -William Cowper, poet
> >>
> >> __________________________________________________
> >> Do You Yahoo!?
> >> Tired of spam?  Yahoo! Mail has the best spam protection around=20
> >> http://mail.yahoo.com=20
> >>                  Building ___ooOOoo__ Rainbows
> >>                       www.trisomyonline.org
> >>                  Families Helping Families On-line
> >>
> >>
> >>
> >>
> >>
> >>                  Building ___ooOOoo__ Rainbows
> >>                       www.trisomyonline.org
> >>                  Families Helping Families On-line
> >>
> >>
> >
> >
> > -- 
> > Sleep is for Pansies.
> >
> > Faith sees the invisible, believes the incredible and receives the
> > impossible!
> > If you want the rainbow, you gotta put up with the rain.
> >
> >
> >
> > ------------------------------
> >
> > Date: Thu, 15 Jun 2006 17:14:06 -0700 (PDT)
> > From: Michelle Prieto <kays017@xxxxxxxxx>
> > Subject: [tri-med] Re: Spanish speaking support needed
> >
> > Susan ,
> >
> >  Thank you. I am so very sorry for you loss as well. Even being in the
> > same situation I don't have the words, other than I'm sorry.
> >
> >  Michelle
> > G&S <hardyboyz@xxxxxxxxxxxx> wrote:
> >  >>>>>>>>>>>>Hi Mary my name is Michelle I am very fluent in spanish. My
> > little boy Carlos passed away April 23, 2006. also T-18. >>>>>>>>>
> >
> >
> >
> >
> >
> >
> >
> >
> > (((((((((((((((Michelle}}}}}}}}}}}}}}}}}}}}
> >
> >
> >
> > Sorry for your loss, we are there right now as well, ( we lost our
> > daughter
> > in February, and its hard.............so I really feel for you
> >
> >
> >
> > Susan mom to Rebecca t18m 06/06/91 - 05/02/06 and Mark age 13 1/2 ADD/LD
> >
> >
> >
> > Building ___ooOOoo__ Rainbows
> > www.trisomyonline.org
> > Families Helping Families On-line
> >
> >
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Tired of spam?  Yahoo! Mail has the best spam protection around
> > http://mail.yahoo.com
> >
> >
> > ------------------------------
> >
> > Date: Fri, 16 Jun 2006 14:25:14 +1000
> > From: Jocelyn <jknowd@xxxxxxxxxx>
> > Subject: [tri-med] Re: Hannah update - Thursday.
> >
> > Hope the peace will reign for some time now that you have Hannah home.
> >
> > At 05:17 AM 16/06/2006, you wrote:
> >>Well, we're home! Hannah is still on O2 but we have the generator so =
> >>that
> >>isn't a problem. Our pharmacy is trying to figure out how to create what
=
> >>the
> >>doctor is ordering for her Baclephen (or however you spell it. I don't =
> >>have
> >>the papers in front of me.) they upped her from 1/2 tab (5 mg) twice a =
> >>day
> >>to a full tab (10 mg) 3 times a day to 12.25 3 times a day. When they
> >>changed to the 12.25 it started coming as a liquid. Evidently the =
> >>hospital
> >>pharmacy was mixing it. Our pharmacy isn't a compounding pharmacy so =
> >>they
> >>were going to check on it to see if they could just mix it or if it had
=
> >>to
> >>be compounded. So we'll get that later today.
> >>
> >>Hopefully this hospitilazation will sway the state to cover the vest
> >>machine!=20
> >>
> >>Zach just turned on the monitor and Caty and I can hear her pulse ox
> >>beeping. Caty just commented that she really missed hearing Hannah =
> >>bubble.
> >>:)
> >>
> >>Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
> >>looks
> >>so much more comfortable in her own bed too!
> >>
> >>Janet and Donnell King in East Tennessee
> >>Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - 3 years
> >>old!!!
> >>Also Amanda, 23, Barry (the child formerly known as Jon), 20, Zach, 17,
=
> >>and
> >>Caty, 14, who are all just as special.
> >>
> >>
> >>
> >>-----Original Message-----
> >>From: Michelle Wilson [mailto:mewildflower1@xxxxxxxxx]=20
> >>Sent: Thursday, June 15, 2006 1:55 PM
> >>To: tri-med@xxxxxxxxxxxxx
> >>Subject: [tri-med] Re: Caroline update
> >>
> >>
> >>
> >>
> >>Irene, I just read your post and it is a week old
> >>almost.  How is Caroline doing now? =20
> >>
> >>Peace and good will toward all things,
> >>Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
> >>Faren(t18,  5 1/2 yrs old!!), the Barbarian aka "The Booper" and Quenby,
=
> >>aka
> >>Poopie Chew. Oh, and wife to Rickeeeeee!
> >>
> >>Patriotism is supporting your country all the time and your government =
> >>when
> >>it deserves it.   -Mark Twain
> >>
> >>Oh, to have a lodge in some vast wilderness, where rumors of oppression
=
> >>and
> >>deceit, of unsuccessful and successful wars may never reach me anymore.
> >>-William Cowper, poet
> >>
> >>__________________________________________________
> >>Do You Yahoo!?
> >>Tired of spam?  Yahoo! Mail has the best spam protection around=20
> >>http://mail.yahoo.com=20
> >>                   Building ___ooOOoo__ Rainbows
> >>                        www.trisomyonline.org
> >>                   Families Helping Families On-line
> >>
> >>
> >>
> >>
> >>
> >>                   Building ___ooOOoo__ Rainbows
> >>                        www.trisomyonline.org
> >>                   Families Helping Families On-line
> >
> >
> > ------------------------------
> >
> > End of tri-med Digest V5 #295
> > *****************************
> >
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
> -- 
> Internal Virus Database is out-of-date.
> Checked by AVG Free Edition.
> Version: 7.1.394 / Virus Database: 268.8.0/352 - Release Date: 5/30/2006
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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