[tri-med] Re: Spanish speaking support needed
- From: "Vladimir Vallenas" <vvallenas@xxxxxxxxxxx>
- To: <tri-med@xxxxxxxxxxxxx>, "tri-med digest users" <ecartis@xxxxxxxxxxxxx>
- Date: Fri, 16 Jun 2006 19:10:24 -0500
My wife and I are from Peru so Spanish is our first language. Our daughter
Josefina is pT6 (not T18) but we all go through very similar experiences.
Just drop me an direct email and let us know if we can help that we will be
happy to.
Vladimir & Monica - parents of Josefina [pT6] - 5 months old and growing
beautifully!
----- Original Message -----
From: "FreeLists Mailing List Manager" <ecartis@xxxxxxxxxxxxx>
To: "tri-med digest users" <ecartis@xxxxxxxxxxxxx>
Sent: Friday, June 16, 2006 1:03 AM
Subject: tri-med Digest V5 #295
> tri-med Digest Thu, 15 Jun 2006 Volume: 05 Issue: 295
>
> In This Issue:
> [tri-med] Re: Spanish speaking support needed
> [tri-med] ethnicity question
> [tri-med] Re: ethnicity question
> [tri-med] Re: Caroline update
> [tri-med] Hannah update - Thursday.
> [tri-med] Re: Hannah update - Thursday.
> [tri-med] Re: Hannah update - Thursday.
> [tri-med] Re: Spanish speaking support needed
> [tri-med] Re: Hannah update - Thursday.
>
> ----------------------------------------------------------------------
>
> From: "G&S" <hardyboyz@xxxxxxxxxxxx>
> Subject: [tri-med] Re: Spanish speaking support needed
> Date: Thu, 15 Jun 2006 02:32:42 -0400
>
>>>>>>>>>>>>>Hi Mary my name is Michelle I am very fluent in spanish. My
> little boy Carlos passed away April 23, 2006. also T-18. >>>>>>>>>
>
>
>
>
>
>
>
>
> (((((((((((((((Michelle}}}}}}}}}}}}}}}}}}}}
>
>
>
> Sorry for your loss, we are there right now as well, ( we lost our
> daughter
> in February, and its hard.............so I really feel for you
>
>
>
> Susan mom to Rebecca t18m 06/06/91 - 05/02/06 and Mark age 13 1/2 ADD/LD
>
>
>
>
> ------------------------------
>
> From: Annee122884@xxxxxxx
> Date: Thu, 15 Jun 2006 10:24:15 EDT
> Subject: [tri-med] ethnicity question
>
> Hi :)
> Question: I'm working on a paper for one of my nursing classes, and was
> wondering if anyone knows of any ethnic/racial links to trisomies. I'm
> especially
> intersted in rates for African-Americans.
> Thanks!
> : ) Annee, SNII
> Oh, how the little things
> Strengthen my tiny wings,
> Help me to take on the world,
> When you love me,
> There's nothing I wouldn't try,
> I might even fly.
> -Sarah Groves, All Right Here
>
>
>
> ------------------------------
>
> Date: Thu, 15 Jun 2006 12:37:16 -0400
> From: dncingqwn@xxxxxxx
> Subject: [tri-med] Re: ethnicity question
>
> i don't know of any specific links but my daughter is 1/2 african american
> and 1/2 caucasian.
>
> kelly
> mom to akaiya T18 - the big girl will be 4 in september!
> www.geocities.com/baby_akaiya
>
> -----Original Message-----
> From: Annee122884@xxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Sent: Thu, 15 Jun 2006 10:24:15 EDT
> Subject: [tri-med] ethnicity question
>
> Hi :)
> Question: I'm working on a paper for one of my nursing classes, and was
> wondering if anyone knows of any ethnic/racial links to trisomies. I'm
> especially
> intersted in rates for African-Americans.
> Thanks!
> : ) Annee, SNII
> Oh, how the little things
> Strengthen my tiny wings,
> Help me to take on the world,
> When you love me,
> There's nothing I wouldn't try,
> I might even fly.
> -Sarah Groves, All Right Here
>
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
> ________________________________________________________________________
> Check out AOL.com today. Breaking news, video search, pictures, email and
> IM. All on demand. Always Free.
>
>
>
> ------------------------------
>
> Date: Thu, 15 Jun 2006 10:55:21 -0700 (PDT)
> From: Michelle Wilson <mewildflower1@xxxxxxxxx>
> Subject: [tri-med] Re: Caroline update
>
>
>
> Irene, I just read your post and it is a week old
> almost. How is Caroline doing now?
>
> Peace and good will toward all things,
> Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
> Faren(t18, 5 1/2 yrs old!!), the Barbarian aka "The Booper" and Quenby,
> aka Poopie Chew. Oh, and wife to Rickeeeeee!
>
> Patriotism is supporting your country all the time and your government
> when it deserves it. -Mark Twain
>
> Oh, to have a lodge in some vast wilderness, where rumors of oppression
> and deceit, of unsuccessful and successful wars may never reach me
> anymore. -William Cowper, poet
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
> ------------------------------
>
> From: "Janet King" <jlvking@xxxxxxxxxxxxxxxxxxx>
> Subject: [tri-med] Hannah update - Thursday.
> Date: Thu, 15 Jun 2006 15:17:50 -0400
>
> Well, we're home! Hannah is still on O2 but we have the generator so =
> that
> isn't a problem. Our pharmacy is trying to figure out how to create what =
> the
> doctor is ordering for her Baclephen (or however you spell it. I don't =
> have
> the papers in front of me.) they upped her from 1/2 tab (5 mg) twice a =
> day
> to a full tab (10 mg) 3 times a day to 12.25 3 times a day. When they
> changed to the 12.25 it started coming as a liquid. Evidently the =
> hospital
> pharmacy was mixing it. Our pharmacy isn't a compounding pharmacy so =
> they
> were going to check on it to see if they could just mix it or if it had =
> to
> be compounded. So we'll get that later today.
>
> Hopefully this hospitilazation will sway the state to cover the vest
> machine!=20
>
> Zach just turned on the monitor and Caty and I can hear her pulse ox
> beeping. Caty just commented that she really missed hearing Hannah =
> bubble.
> :)
>
> Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
> looks
> so much more comfortable in her own bed too!
>
> Janet and Donnell King in East Tennessee
> Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - 3 years
> old!!!
> Also Amanda, 23, Barry (the child formerly known as Jon), 20, Zach, 17, =
> and
> Caty, 14, who are all just as special.
>
>
>
> -----Original Message-----
> From: Michelle Wilson [mailto:mewildflower1@xxxxxxxxx]=20
> Sent: Thursday, June 15, 2006 1:55 PM
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: Caroline update
>
>
>
>
> Irene, I just read your post and it is a week old
> almost. How is Caroline doing now? =20
>
> Peace and good will toward all things,
> Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
> Faren(t18, 5 1/2 yrs old!!), the Barbarian aka "The Booper" and Quenby, =
> aka
> Poopie Chew. Oh, and wife to Rickeeeeee!
>
> Patriotism is supporting your country all the time and your government =
> when
> it deserves it. -Mark Twain
>
> Oh, to have a lodge in some vast wilderness, where rumors of oppression =
> and
> deceit, of unsuccessful and successful wars may never reach me anymore.
> -William Cowper, poet
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam protection around=20
> http://mail.yahoo.com=20
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
>
>
>
>
> ------------------------------
>
> From: "jwaite" <jwaite@xxxxxxxxxxxxx>
> Subject: [tri-med] Re: Hannah update - Thursday.
> Date: Thu, 15 Jun 2006 15:27:15 -0400
>
>
> ----- Original Message -----
> From: "Janet King" <jlvking@xxxxxxxxxxxxxxxxxxx>
>> Zach just turned on the monitor and Caty and I can hear her pulse ox
>> beeping. Caty just commented that she really missed hearing Hannah =
>> bubble.
>> :)
>
> LOL
>
>> Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
>> looks
>> so much more comfortable in her own bed too!
>
> Glad you're home and hope that Miss Hannah lets you stay there for a long,
> long while!
>
> Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (15)
> MichiganUSA
>
>
> ------------------------------
>
> Date: Thu, 15 Jun 2006 15:31:41 -0400
> From: Debbie <debbwebb@xxxxxxxxx>
> Subject: [tri-med] Re: Hannah update - Thursday.
>
> AAAaaaaaahhhh ! ! !
> Thanks so much for the update... I needed that!
>
> Debbie, mom to Claire (t18)
>
>
> On 6/15/06, Janet King <jlvking@xxxxxxxxxxxxxxxxxxx> wrote:
>>
>> Well, we're home! Hannah is still on O2 but we have the generator so =
>> that
>> isn't a problem. Our pharmacy is trying to figure out how to create what
>> =
>> the
>> doctor is ordering for her Baclephen (or however you spell it. I don't =
>> have
>> the papers in front of me.) they upped her from 1/2 tab (5 mg) twice a =
>> day
>> to a full tab (10 mg) 3 times a day to 12.25 3 times a day. When they
>> changed to the 12.25 it started coming as a liquid. Evidently the =
>> hospital
>> pharmacy was mixing it. Our pharmacy isn't a compounding pharmacy so =
>> they
>> were going to check on it to see if they could just mix it or if it had =
>> to
>> be compounded. So we'll get that later today.
>>
>> Hopefully this hospitilazation will sway the state to cover the vest
>> machine!=20
>>
>> Zach just turned on the monitor and Caty and I can hear her pulse ox
>> beeping. Caty just commented that she really missed hearing Hannah =
>> bubble.
>> :)
>>
>> Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
>> looks
>> so much more comfortable in her own bed too!
>>
>> Janet and Donnell King in East Tennessee
>> Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - 3 years
>> old!!!
>> Also Amanda, 23, Barry (the child formerly known as Jon), 20, Zach, 17, =
>> and
>> Caty, 14, who are all just as special.
>>
>>
>>
>> -----Original Message-----
>> From: Michelle Wilson [mailto:mewildflower1@xxxxxxxxx]=20
>> Sent: Thursday, June 15, 2006 1:55 PM
>> To: tri-med@xxxxxxxxxxxxx
>> Subject: [tri-med] Re: Caroline update
>>
>>
>>
>>
>> Irene, I just read your post and it is a week old
>> almost. How is Caroline doing now? =20
>>
>> Peace and good will toward all things,
>> Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
>> Faren(t18, 5 1/2 yrs old!!), the Barbarian aka "The Booper" and Quenby,
>> =
>> aka
>> Poopie Chew. Oh, and wife to Rickeeeeee!
>>
>> Patriotism is supporting your country all the time and your government =
>> when
>> it deserves it. -Mark Twain
>>
>> Oh, to have a lodge in some vast wilderness, where rumors of oppression =
>> and
>> deceit, of unsuccessful and successful wars may never reach me anymore.
>> -William Cowper, poet
>>
>> __________________________________________________
>> Do You Yahoo!?
>> Tired of spam? Yahoo! Mail has the best spam protection around=20
>> http://mail.yahoo.com=20
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org
>> Families Helping Families On-line
>>
>>
>>
>>
>>
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org
>> Families Helping Families On-line
>>
>>
>
>
> --
> Sleep is for Pansies.
>
> Faith sees the invisible, believes the incredible and receives the
> impossible!
> If you want the rainbow, you gotta put up with the rain.
>
>
>
> ------------------------------
>
> Date: Thu, 15 Jun 2006 17:14:06 -0700 (PDT)
> From: Michelle Prieto <kays017@xxxxxxxxx>
> Subject: [tri-med] Re: Spanish speaking support needed
>
> Susan ,
>
> Thank you. I am so very sorry for you loss as well. Even being in the
> same situation I don't have the words, other than I'm sorry.
>
> Michelle
> G&S <hardyboyz@xxxxxxxxxxxx> wrote:
> >>>>>>>>>>>>Hi Mary my name is Michelle I am very fluent in spanish. My
> little boy Carlos passed away April 23, 2006. also T-18. >>>>>>>>>
>
>
>
>
>
>
>
>
> (((((((((((((((Michelle}}}}}}}}}}}}}}}}}}}}
>
>
>
> Sorry for your loss, we are there right now as well, ( we lost our
> daughter
> in February, and its hard.............so I really feel for you
>
>
>
> Susan mom to Rebecca t18m 06/06/91 - 05/02/06 and Mark age 13 1/2 ADD/LD
>
>
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>
>
> ------------------------------
>
> Date: Fri, 16 Jun 2006 14:25:14 +1000
> From: Jocelyn <jknowd@xxxxxxxxxx>
> Subject: [tri-med] Re: Hannah update - Thursday.
>
> Hope the peace will reign for some time now that you have Hannah home.
>
> At 05:17 AM 16/06/2006, you wrote:
>>Well, we're home! Hannah is still on O2 but we have the generator so =
>>that
>>isn't a problem. Our pharmacy is trying to figure out how to create what =
>>the
>>doctor is ordering for her Baclephen (or however you spell it. I don't =
>>have
>>the papers in front of me.) they upped her from 1/2 tab (5 mg) twice a =
>>day
>>to a full tab (10 mg) 3 times a day to 12.25 3 times a day. When they
>>changed to the 12.25 it started coming as a liquid. Evidently the =
>>hospital
>>pharmacy was mixing it. Our pharmacy isn't a compounding pharmacy so =
>>they
>>were going to check on it to see if they could just mix it or if it had =
>>to
>>be compounded. So we'll get that later today.
>>
>>Hopefully this hospitilazation will sway the state to cover the vest
>>machine!=20
>>
>>Zach just turned on the monitor and Caty and I can hear her pulse ox
>>beeping. Caty just commented that she really missed hearing Hannah =
>>bubble.
>>:)
>>
>>Oh, it will be SOOOOOO nice to be in our own bed tonight. And Hannah =
>>looks
>>so much more comfortable in her own bed too!
>>
>>Janet and Donnell King in East Tennessee
>>Parents of Hannah Emily - 5-6-03 - Trisomy 14 Mosaic Partial - 3 years
>>old!!!
>>Also Amanda, 23, Barry (the child formerly known as Jon), 20, Zach, 17, =
>>and
>>Caty, 14, who are all just as special.
>>
>>
>>
>>-----Original Message-----
>>From: Michelle Wilson [mailto:mewildflower1@xxxxxxxxx]=20
>>Sent: Thursday, June 15, 2006 1:55 PM
>>To: tri-med@xxxxxxxxxxxxx
>>Subject: [tri-med] Re: Caroline update
>>
>>
>>
>>
>>Irene, I just read your post and it is a week old
>>almost. How is Caroline doing now? =20
>>
>>Peace and good will toward all things,
>>Michelle Wilson, mother to our BIG GIRL(ok, really the forever baby),
>>Faren(t18, 5 1/2 yrs old!!), the Barbarian aka "The Booper" and Quenby, =
>>aka
>>Poopie Chew. Oh, and wife to Rickeeeeee!
>>
>>Patriotism is supporting your country all the time and your government =
>>when
>>it deserves it. -Mark Twain
>>
>>Oh, to have a lodge in some vast wilderness, where rumors of oppression =
>>and
>>deceit, of unsuccessful and successful wars may never reach me anymore.
>>-William Cowper, poet
>>
>>__________________________________________________
>>Do You Yahoo!?
>>Tired of spam? Yahoo! Mail has the best spam protection around=20
>>http://mail.yahoo.com=20
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org
>> Families Helping Families On-line
>>
>>
>>
>>
>>
>> Building ___ooOOoo__ Rainbows
>> www.trisomyonline.org
>> Families Helping Families On-line
>
>
> ------------------------------
>
> End of tri-med Digest V5 #295
> *****************************
>
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
- Follow-Ups:
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- From: Mary Kellett
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- [tri-med] Re: Spanish speaking support needed
- From: Mary Kellett