[tri-med] Re: Smiles from Keren and med news


----- Original Message -----
From: "Kraig Warnemuende" <ad6075@xxxxxxxxx>
>  Is she progressing
> along the same lines?

Wow, she's doing some great things!

>
> Fortunately, he's not
> dilly-dallying around about anything, 'cause as he put it, eating and
> breathing issues are things you just don't wait on.

That's quite a plus.


> But we do want to put the questions out there before we jump into any
> sort of surgery....  Have any of you had your child's jaw extended?  Is
> it a help (not just for eating, but in general)?

It was determined that Alex's frenulum (sp??)--the connecting tissue under
the tongueto the bottom of the mouth---was keeping his tongue from being
able to move hardly at all. We had it clipped (in the office a few snips of
scissors) and immediately his feeding was better. He was able to manipulate
things with his tongue after that. We still had food issues but this helped.
Just thought I'd throw this out as some mouth/feeding issues.

Sorry but no experience with the jaw surgery.

 Michelle mom to Alex (15,partial trisomy 14 mosaic) and Molly (12)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: