Shannon,
What is a peaked palate?
Jennifer, mom to Isabel Pt13, 2yrs
>
> From: "The Shepherds" <shepherds@xxxxxxxxxxxxx>
> Date: 2006/02/27 Mon PM 08:44:19 EST
> To: <tri-med@xxxxxxxxxxxxx>
> Subject: [tri-med] Re: Slow weight gain
>
> Bernita
> i wanted to reply sooner but i haven't had the time. Please be sure to have
> Payton seen by a GI dr. Gabby was very difficult to feed when she was born
> and hadvery slow weight gain. She had such a difficult time sucking on a
> bottle and cried constantly, (just ask anyone who was at the conference in
> Pittsburgh.) It wasn't until she was nearly 8 weeks old and had barely
> gained any weight that we found out about her peaked palate. She couldn't
> suck no matter how hard she tried and to do it exhausted her. it turned out
> that gabby had severe reflux. and never once did it show up on a test. it
> used to take us over an hour to get 1 ounce into gabby with a regular bottle
> but once we found the Habermann Feeder it helped immensly.
> if i can be of anymore help please feel free to email me.
>
>
>
> Shannon
> mom to Gabby Pt13, 8 years, Sumer, 12 years old (need i say more) Justin and
> Nick 2 1/2 year old twins ( i repeat...need i say more?) step mom to Audrey
> 21, Eric 19, nanashan to Liam 6 months. and wife to Paul....(god love him
> for putting up with us all.)
>
> ----- Original Message -----
> From: "Gary and Bernita" <g.savage@xxxxxxxxx>
> To: <tri-med@xxxxxxxxxxxxx>
> Sent: Monday, February 20, 2006 10:00 AM
> Subject: [tri-med] Slow weight gain
>
>
> We went to visit Payton yesterday. I hadn't seen here in a week and a half.
> She looked so tired. She hasn't been sleeping good at all for the past 3-4
> days. Renee said she cried all day Saturday and there was nothing they
> could do to make her happy. She will only drink about 1 1/2 ounces of
> formula at a time. If you try to get her to eat more than that she will
> leave the nipple in her mouth but just let the milk run out the side. Then
> she will take more in about half an hour or so. But still only about 2 -3
> ounces every 4 hours. She is 9 weeks now and weighs 7 1/2 pounds. But that
> is what she weighed 2 weeks ago, so she hasn't gained any weight for 2
> weeks. She was pale and had dark circles under her eyes. I really think
> she is having pain somewhere because she wakes herself from a sleep with a
> screaming cry. She is taking cereal at night. That started making her
> constipated so the doctor said to add prune juice to her milk during the
> day. They are using regul
> ar prune juice, not baby, because they said that is what the doctor said.
> Even with that it seem painful for her to go. I will say that once she did
> have a bm yesterday she was able to sleep for over an hour and seemed more
> her old self. Does any of this make sense you? I am worried about her. I
> haven't said anything to the kids because I don't want to alarm them. After
> Gary and I left I asked him what he thought when he first say Payton
> yesterday and he said he just thought that she didn't even look like the
> same baby. There is so much stress on her face. This sound weird but she
> looked like a old person. You know, the color of her face, the way she had
> deep frowns.
> Any suggestions? Is this all part of the up and down of tri, or could there
> be a problem with her digestive tract? Help please.
>
> Bernita, Grandma to Payton born December 8, 2005 Trisomy 13
>
> Where there is great love, there are always miracles.
>
> -Willa Cather
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line