[tri-med] Re: Sleep Apnea?Jayne

Laurie,
Good luck at the appointment on Tuesday! I'm so glad you got in to see
someone! Isn't it sad that we have to fight and/or search sometimes for a
good medical treatment? I'll be praying for you and Bri!!!
Katie
Mom to Mitchell mosaic t13
Www.caringbridge.org/mn/mitchelljohncragg


On 12/28/05 9:29 PM, "TRIER9@xxxxxxx" <TRIER9@xxxxxxx> wrote:

> Thanks Jayne! I will ask the doctor about this. We are going to Stanford
> Children's Hospital on Tuesday.....whew!! Got that apt on a wing and a
> prayer!!
> Doctors here want to do surgery......no guarantee it will help Bri, but it
> will for sure take away some of her speech quality =(
> 
> There HAS to be something that can help her breathe at night!!
> 
> The doctor I spoke with today was very helpful and got Bri squeezed into an
> appt next week!  I am SO relieved
> 
> Amazing to me, but by the phone consult today, found out that Bri should NOT
> be wearing a full face mask......since she vomits every night we put that
> darned thing on her.
> Just cannot believe they didn't think of that(or tell me)!! AND the fact that
> when she is getting air via her nose only, her mouth drops open and the air
> does not help....SATS drop. Geesh, cannot believe how much researching I am
> having to do. THis is just crazy/nuts that her doctors are not helping us out
> more.  I am really feeling like her Trisomy is being factored in the way of
> proper treatment. Just not right at all.
> 
> Thanks again, so much!
> Laurie
> Proud Mom to Brianna, age 16 w/Trisomy 9p/21 translocation, Brandon, age 13
> Marissa, age 7 with Cerebral Palsy and SOD, and new baby Kayla w/Trisomy 21
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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