[tri-med] Re: Sleep Apnea

Mieko uses a vapotherm machine for obstructive apnea. It blends high flow air 
with oxygen to keep the airway open. They say it's much more comfortable than 
BIPAP OR CPAP since it uses canulas instead of a mask or prongs. There's also 
heat and humidity in the system. Mieko still likes to pull the canulas off, but 
handles it well most of the time. 
   
  Maya
  Mom of Mieko 3/09/04 full T18
Jocelyn Knowd <jknowd@xxxxxxxxxx> wrote:
  Tess has been on first CPAP and then BIPAP, both humidified and has 
never had a problem with vomitting on either. Someone else's 
suggestions about obstructions somewhere might be a clue. I'm told 
that some nights Tess just won't tolerate the BIPAP for some reason. 
She also appears to sleep quite soundly and peacefully without it. 
Hope you find a solution to these troublesome problems quickly.

At 03:56 AM 23/12/2005, you wrote:
>Thanks Michelle,
>I will try to keep ya'll updated. Ya know, last night I kept the darn mask
>off of her......she sleeps better without it! Sleep apnea and all! She does
>apnea sometimes up to 57 times a minute.......BUT......I noticed that if she
>sleeps in her comfy ole' position, the one she always did as a baby, 
>she sleeps
>more sound. Bri arches her back.......head waaaaay back. Last night 
>her arm was
>up/forward onto her pillow and back arched, she looked so peaceful. Even woke
>up early this a.m. to take baby Kayla to get her RSV shot and go Christmas
>shopping with Dad and brother.
>.....still sporting lots of epoxy glue in her hair from the sleep study. Mom
>told her to put on a Santa hat and head on out! LOL
>
>Happy Holidays!
>Laurie
>Proud Mom to Brianna, age 16 w/Trisomy 9p/21 translocation, Brandon, age 13
>Marissa, age 7 with Cerebral Palsy and SOD, and new baby Kayla w/Trisomy 21
>
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
>
>
>
>--
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Jocelyn, Wife to Frank, Mother to Ian, Gillian and Susan
Grandmother (Nanna) to Carly 18, Mathew 16, Ashleigh 15, Alex 13 and 
Tess 8 1/2 (T18)
Living at North Richmond, NSW Australia 

Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line

  


                
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