[tri-med] Sleep Apnea

This is a letter I cut/pasted from the Trisomy 9 list I belong to.  Thought 
it would be a good idea to pass it on to this list for idea's. You guys are 
always good at those!
Thanks so much, Laurie
> Do any of your children have issues with sleep apnea?  Brianna has severe 
> obstructive sleep apnea. We tried another sleep study last night, but she 
> cannot tolerate the mask/air pillows.  She stayed awake until 
> 4a.m.........even 
> after taking a sleeping pill at midnight.  
> The CPAP machine makes her vomit.  We have tried different masks and even 
> added humidity to her machine, but she still gets very sick. She has lost 
> close 
> to 20lbs and we are very worried about her health.
> She stops breathing 57 times a minute. Sometimes not breathing for 20 
> seconds at a time. 
> I kept putting off writing this letter because I didn't want to worry anyone 
> about their child. Brianna has other issues as well and we are very worried. 
>  I just don't feel comfortable sharing them right now. 
> Hope I can find some answers soon.  I am homeschooling her until we get some 
> answers.
> A few doctors have indicated to me that 'she is supposed to deteriorate 
> anyway.'
> Just INFURIATES me to no end!
> 
> 
> Laurie
> Mom to Brianna, age 16w/trisomy 9p, Brandon, age 13, Marissa, age 7 and 
> baby-Kayla, age 4 months w/trisomy 21
> --^^---------------------------------------------------------------
> 





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