[tri-med] Re: Sierra Update

----- Original Message ----- 
From: "Nicole Jones" <jones@xxxxxxxx>
> I
> am one of those people that has to go home and think about it for awhile
> before I come up with my questions.  Kind of inconvenient.

Me too!  I wish I thought better on my feet.  Maybe, too tired most of the
time!


> >His initial thought was her brain was in better shape than he
> >expected
> Why did they suspect something to be going on?

The scan was Oct. 2nd.  It was just to get a baseline.  Nothing else.


> This may sound bad, but I don't know who Dr. Carey is.

Dr. Carey has been working with Trisomy 18/13 kids for years.  He has
written alot of information about family expectations & care of trisomy 18
kids.  He is a co-founder of SOFT.  Check out www.trisomy.org.

> I did get some good news from the ped. doc today.  She ordered an
abdominal
> sono, a sedated hearing test, and an echocardiogram.  All this on top of
the
> MRI and EEG the neuro. ordered.  Since they will sedate Sierra for all of
> these tests, the ped. doc ordered that a physician be present for the
entire
> sedation.  In case of an emergency there will be a doc on hand.  That
eases
> my worries a little.

Nicole, sounds like you're ped is takeing great care of Sierra & your
family.

> I am glad that you are all in good health.  Luckily, we are to :o)

Thanks!
Chris mama to Mari full T18 (2 yrs)
Tipp City, OH
http://photos.yahoo.com/MissTippCity
http://home.earthlink.net/~loganfamily/index.html

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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