[tri-med] Re: Shriners reply

it sounds to me like the key is "global developmental delay".  maybe they
dont think our kids will benefit from any quality of life improvements.

have you looked into other groups for funding like knights of columbus?
jude, mom to derek-16, kelsey-14 and
kameron-5-full trisomy 18
golden, colorado, usa
chromosome 18 registry & research society
trisomy syndrome coordinator
http://chromosome18.org/stories_trisomy.htm#Wolpert
http://www.trisomyonline.org/wolpert.htm
----- Original Message -----
From: "Annette O." <MANSON666691@xxxxxxxxxxx>
> "Orthopedic treatment has found to be of limited benefit in certain
conditions, such as athetoid cerebral palsy, quadriplegic cerebral palsy,
global development delay, many neuromuscular conditions, infantile seizures
and hypotonia.
> Review of your child's application shows that your child's medical
condition would best be primarily treated by a docotr specializing in
Neurology or Physical Medicine and Rehabilitation.  Although orthopedic
surgeons may be invilved in your child's case, it is best carried out in a
multidisciplinary Children's Hospital, rather than a specialty hospital such
as Shriners.  As a result, we are unable to accept your child for care at
the Houston Shriners Hospital.



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